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    #46
    Infusions started today....Ouch!

    The nurse had a hard time with the IV line but got it in after 3 tries. I just hope it lasts for the 3 days. My sugars went sky high tonight up to 388 just from the meds and not from anything I ate! I got a horrible headace which I still have and I'm waiting to go to bed when it calms down. I'm going to take another dose of the hydrocodone/tyenol tablets and see if that helps. I probably will not be posting again until this series is finished. Hope all is well where you are. We just missed having a tornado hit our area by about 10 miles. We always go to the basement when we have a warning. The area 10 miles north of us is being called tornado alley now after having the one in April and this one track for 24 miles north of us. It damaged a lot of houses but no injuries. See you'all later.

    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

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      #47
      Rodeo Queen. Niiice.

      I love the big sweet work horses with heads as long as my torso
      and eyes the size of giant plums...

      Comment


        #48
        Originally posted by JTwin View Post
        My horse was American Saddle Bred. 4 white stockings. I used to ride her in stock. She was such a beautiful horse. I would love to have another one and I may one day. My best friend tells me "no more animals!" and she has a very strong argument going. LOL! I'm sure I could still ride a horse but I'm not so sure I could care for one. A lot of work goes into maintaining a healthy horse as you know. How does your horse take care of you, Peg? I'd love to know more about that.
        well he sniffs my leg, he taught himself this, to figure out my balance issues, then adjust to it , my husband taught him to kneel, so I could swing on,, but stubborn me says a mounting block is better,,when I went to bridle him, I fell, and he just stood and looked at me,,like "come on !! get up ! !" He pulled me back from a hill one time, I was going to fall,,I love to ride, I thought, I would'nt be able to , when I progressed, but my hubby makes sure i do,,

        My Springer Spaniel Annie, is a angel in fur, she has stepped in to help me walk, kept our cows away from me, when I did fall,{I had the corn bucket},, she constantly watches

        so much for dumb creatures huh..
        Last edited by Pegakafarmgirl; 09-08-2011, 01:14 PM.
        " Don't outsmart your common sense"

        Peg

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          #49
          Originally posted by Pegakafarmgirl View Post
          well he sniffs my leg, he taught himself this, to figure out my balance issues, then adjust to it , my husband taught him to kneel, so I could swing on,, but stubborn me says a mounting block is better,,when I went to bridle him, I fell, and he just stood and looked at me,,like "come on !! get up ! !" He pulled me back from a hill one time, I was going to fall,,I love to ride, I thought, I would'nt be able to , when I progressed, but my hubby makes sure i do,,

          My Springer Spaniel Annie, is a angel in fur, she has stepped in to help me walk, kept our cows away from me, when I did fall,{I had the corn bucket},, she constantly watches

          so much for dumb creatures huh..
          That's brilliant about your horse, Peg! I' so happy you can continue to ride.

          My dogs watch over me too. The Australian Shepherd helps me get up and when I fall they both come and sit by me until I can get up. They stay right there with me. You can see the concern on their faces. Animals sense so much about us, dont they.

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            #50
            Gabriella. I hope you feel better soon.

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              #51
              I love your horse and your pooch, Peg..

              Feel better soon Gabriella.

              I hope TY keeps working for you JTwin.
              Last edited by SalpalSally; 09-10-2011, 10:47 AM.
              Love, Sally


              "The best way out is always through". Robert Frost






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                #52
                Peg, if I have figured out my math right <doubtful> you are flying to Miami at 6AM tomorrow to get the stem cell treatment. I am thinking of you. Be well and get better-er!
                ANN
                There comes a time when silence is betrayal.- MLK

                Comment


                  #53
                  Peg, I hope that the procedure will be problem-free for you and will mean better days ahead for you, with more horseback riding.
                  SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                    #54
                    How many other People were watching the Today Show, exactly 10 years ago, on a beautiful Sunny day, in NYC, with their mouth hanging open, and tears running down your faces?

                    ~~~~~~WE WILL NEVER FORGET!!!
                    Love, Sally


                    "The best way out is always through". Robert Frost






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                      #55
                      Sally, I remember, who could forget, but I am not going back there - just going forward. We have all lost people in different ways and it hurts us all but we go on. I can only hold all of that pain from 9/11 for so long. I have a big place in my heart for the passengers and crew that downed the plane in Shanksville, PA. Now, I must move forward.

                      ANN
                      There comes a time when silence is betrayal.- MLK

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                        #56
                        Hard to believe I haven't checked in in a week. Today we celebrated Elsie's third birthday. I am exhausted. I had a great day last weekend . Dave washed and detailed my car then we went to a matinee of the musical "The drowsy Chaperone"...last performance of the season for our local summer stock theater. Then out for a magnificent dinner at a new Italian restaurant near here.

                        This week has brought car repairs (brakes, hubs, hydraulics on my car), a friend's wedding, two birthday parties, more labs (my marrow is still not bouncing back from the Cytoxan even though the last dose was 6 weeks ago and I was having the infusions every three weeks. Nephew was in a motorcycle accident without a helmet and is in ICU in St. Louis. He just turned 17. Multiple fractures, road rash and head injuries.

                        So tired, I think I'll turn in early.

                        Peg should be having her procedure tomorrow. The company is stemgenex.com and uses stem cells from adipose tissue. It is not FDA approved and cannot be regulated and costs over $10,000/ treatment with no guarantees. I hope it helps her. She's certainly in line for some good luck with this.

                        Comment


                          #57
                          Hope for Peg

                          I hope Peg gets some good results from this treatment. Why do we all have to be the guinea pigs for these new treatments for MS and also pay such high prices to do so? Am I the only one that thinks this is not right? We also have to make most of the decisions on whether to have a treatment that is not approved by the FDA or even one that is. It's like MS is a DIY project!

                          Gabriella
                          Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
                          Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

                          "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

                          Comment


                            #58
                            I'm afraid that's just what MS is--a DIY project. Not enough is known about the central nervous system and about MS in particular, IMO. So we're all just groping around in the general darkness.

                            Sounds as if Peg is being a pioneer, all right. I admire her for going ahead with this and I hope she'll get good results--and be back on her horse soon!
                            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                            Comment


                              #59
                              A little late but thank you, Sally. I hope Ty continues to work for me too.

                              Peg, I also wanted to tell you that I'm teaching my dogs to be assistance dogs. One has firmly learned "get it" "bring" and "give". He will bring most anything to me. Now I'm teaching him the name of as many things as I can, commonly used items around the house. Next, the light switch! It's so much fun.

                              Comment


                                #60
                                Talking about horses and doggies just reminded me of how much I love watching Caesar, the Dog Whisperer on NatGeo, I'm watching it now and they just did an episode with a lady, who has horses and a rambuncious Rotweiler.

                                It's amazing, as Ceasar teaches her how to calm the Dog down, and at the same time get the horses to relax as well. I have learned a lot from him. He is sooooooo good. (And the rumor about his kicking dogs is grossly & rediculously overstated.)
                                Last edited by SalpalSally; 09-12-2011, 11:00 AM.
                                Love, Sally


                                "The best way out is always through". Robert Frost






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