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    #1

    Drug Trial Disaster

    French drug trial disaster leaves one brain dead, five injured
    By Matthias Blamont
    Reuters - Reuters - ‎Friday‎, ‎January‎ ‎15‎, ‎2016
    One person has been left brain dead and five others are in serious condition after taking part in a clinical trial in France of an experimental painkiller made by Portuguese drug company Bial, the French Health Ministry said on Friday.


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    "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

    Albert Einstein
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    #2
    Originally posted by Howie View Post
    French drug trial disaster leaves one brain dead, five injured
    By Matthias Blamont
    Reuters - Reuters - ‎Friday‎, ‎January‎ ‎15‎, ‎2016
    One person has been left brain dead and five others are in serious condition after taking part in a clinical trial in France of an experimental painkiller made by Portuguese drug company Bial, the French Health Ministry said on Friday.


    Only registered and activated users can see links., Click Here To Register...
    Not a great drug trial. Oh my what a disaster. Thanks for the info Howie

    Peace
    The early bird catches the worms~~~~~that means, I wake up early and have worms. lol

    That's my son's words of wisdom to me! ! lol

    Comment

      #3
      Braindead?

      I really admire anyone with the courage to enroll in a drug trial. I'm too "risk-averse" or whatever it's called when you're a lily-livered chicken.

      We've had people here who have been in drug trials. Does anyone remember Dee Walter? She was in the Tysabri trial--I think it was called the alpha-integrin trial.
      Last edited by agate; 01-15-2016, 10:24 AM.
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

      Comment

        #4
        I remember Dee. And you're right, it does take a great deal of courage to sign up for any trial, and anyone who does signs up to help others. Very admirable!
        "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

        Albert Einstein

        Comment

          #5
          OMG!! Thanks Howie!!

          They still are not on the totally right track for MS drugs.
          Love, Sally


          "The best way out is always through". Robert Frost






          Comment

            #6
            Pointing a gun at my head and pulling the trigger would be more effective in my case. No clinical trials for me!


            Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

            Comment

              #7
              Originally posted by SalpalSally View Post
              OMG!! Thanks Howie!!

              They still are not on the totally right track for MS drugs.


              Yeah Sally how right you are. How many neuros or docs even know much about ms? How many neuros & docs have different opinions about ms? Sh÷t it's like rolling the dice. I believe that WE MS'rs know more about ms. We do lots of research & speak with people, THEN we have our bodies explaining the crap to us. Maybe one day docs & neuros will understand & believe the crap our bodies do to us. Just my opinion peeps.
              Peace
              The early bird catches the worms~~~~~that means, I wake up early and have worms. lol

              That's my son's words of wisdom to me! ! lol

              Comment

                #8
                Has anyone heard of any doctors or a neuro that actually have MS? That would be someone I would want to treat me.
                "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                Albert Einstein

                Comment

                  #9
                  Lamar Freed...M.D. Has MS

                  Originally posted by Howie View Post
                  Has anyone heard of any doctors or a neuro that actually have MS? That would be someone I would want to treat me.

                  Lamar Freed has MS and has written the best paper on MS fatigue that I have ever read. I have posted about it many times. Use your new Google friend! Just put Lamar Freed fatigue in the search box and you should easily get it.

                  If we did not have patients willing to take a risk or researchers willing to keep investigating then I would be in a real mess. I benefit greatly from what they do. The neuro I see is also great. He listens to me and we consult with others when we are at a crossroad.
                  Linda
                  Linda~~~~

                  Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

                  Comment

                    #10
                    I remember Dr. Freed. He did right an excellent fatigue article. Great memory Laz. I knew there was a doctor but couldn't come close to remembering who it was.
                    DAR
                    R/R 1993
                    Draw close to God and he will draw close to you. - James 4:8

                    Comment

                      #11
                      Just want to give kuddos to Howie for finding, copying and pasting to start this thread.

                      Your skills are sky rocketing, Rocket Man!

                      ANN
                      There comes a time when silence is betrayal.- MLK

                      Comment

                        #12
                        Is this the article by Lamar Freed?

                        Only registered and activated users can see links., Click Here To Register...
                        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                        Comment

                          #13
                          Me shmart, me look for things.

                          I will look up Dr. Freed tomorrow. Tonight, I'm watching Hendrix in concert. His was the first album I bought at the tender age of 16. I still love his music.
                          "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                          Albert Einstein

                          Comment

                            #14
                            Wow! Heartbreaking! Just goes to show introducing one substance into the brain and/or body can really throw the whole system off. I'm so sad for all of the people in the trial especially the person left brain dead.

                            Yeah Sally how right you are. How many neuros or docs even know much about ms? How many neuros & docs have different opinions about ms? Sh÷t it's like rolling the dice. I believe that WE MS'rs know more about ms. We do lots of research & speak with people, THEN we have our bodies explaining the crap to us. Maybe one day docs & neuros will understand & believe the crap our bodies do to us. Just my opinion peeps.
                            Peace
                            My whole life dealing with docs and physical therapists for my Cerebral Palsy. My friends with CP and I tend to pick up things about each other that the docs don't pay much attention to. I think people in the medical community can learn a lot from people who actually have the condition(s).
                            Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
                            My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

                            Comment

                              #15
                              This trial was based on a cannabis based drug. I can't imagine the dose they were given to kill him. I would hold the people who ran this trial legally responsible. They just wanted to push the limit to see how much was too much. They found out, at the expense of someone's life!
                              "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                              Albert Einstein

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