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"loss of awareness", a MS cognitive symptom

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    "loss of awareness", a MS cognitive symptom

    This is what I remember.

    I stopped running suddenly. I was aware that something was deeply wrong. I turned around 360 degrees. I had no idea where I was. I had no idea where these trails went. I had no idea how I got here or where I was going. Nothing was familiar.

    It was such an odd and foreign sensation. It felt different from being lost. It felt like I was being denied access to the information in my brain that would tell me where I was. I was blank. I could not understand what was happening to me.

    Did I make a connection with MS? Until then I had four MS attacks, I’d been paralyzed twice, suddenly and without warning. So maybe. Everything about MS seemed weird so perhaps this was MS too?

    What I do remember is that I was working really hard to just keep my sh** together. Keeping my breathing under control (like any good runner would). So I don’t think I spent anymore than the obvious amount of time considering my loss of where-ness.

    I walked along a trail toward the middle of the meadow and came to a stream. It was shallow, clear, maybe 6 feet across (I’m 6ft. tall). It had stones and sand on the bottom; anyway, it wasn’t a muddy bottom. I remember the banks were not very high, maybe a foot, and that they were grassy and green.

    I remember sitting on the grassy trail next to the stream.

    At some point while I was sitting there, I distinctly remember that I saw some water boatman, a type of large beetle with long paddle’s for front feet, which they use to swim across the water surface, leaving tangled wakes behind them.

    Time passed, I don't know how much; maybe one hour, maybe three, I didn't have a watch on.

    When I looked up from the stream I recognized the low wooded hills that surrounded the tall grasses in the middle of the meadow. I recognized the trail that ran east to Sunset Point. I recognized the trial that went south out of the meadow back to the car. I walked or ran back to my car.

    #2
    Oh my goodness RC, what an experience from he!!. Scaryyyyy!
    i believe it was MS.
    Glad you are OK now. Don't do that again...LOL!
    Last edited by SalpalSally; 05-14-2016, 06:53 AM.
    Love, Sally


    "The best way out is always through". Robert Frost






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      #3
      This happened recently? Or sometime in the past?

      Comment


        #4
        Welcome back, redcardinal!

        This must have been frightening.It sounds as if it happened a while back? In one of your previous posts you described something that might have been an optical migraine. I wonder if this was something like that other experience?
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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          #5
          welcome to crazy world of MS symptons,,when you think U have things figured out,, it doesn't happen,,

          been there a few times myself,,hang in there..
          " Don't outsmart your common sense"

          Peg

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            #6
            Thanks for this, Redcardinal. I wonder if it was MS related to temperature.

            ANN
            There comes a time when silence is betrayal.- MLK

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              #7
              RE: "loss of awareness", a MS cognitive symptom

              In all good humor — and 'seriousness' — I decided to accept the 'advice' I once got from a bona fide Neuroquack™: "[There is nothing wrong; It's] just your altered perception."

              Personally, I find this outcome at once deliciously ironic *and* universally applicable @ MS.

              YMMV
              Last edited by Exacerbator; 05-14-2016, 08:59 AM. Reason: Semantics

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                #8
                I think I would call the neuro in case it's not just MS, like a weird type of seizure, or stroke. I take it yu do not have Alzheimer's?

                Some seizures can make you feel like everything around you is not quite real. It's called derealization. It can also cause disorientation.

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                  #9
                  I think it's easier to take this kind of happening as MS rather than worry
                  myself to death about whatever other horror it could be.....Eeeeek!
                  Last edited by SalpalSally; 05-14-2016, 05:42 PM.
                  Love, Sally


                  "The best way out is always through". Robert Frost






                  Comment


                    #10
                    Originally posted by SalpalSally View Post
                    I think it's easier to take this kind of happening as MS rather than worry
                    myself to death about whatever other horror it could be.....Eeeeek!
                    Yes--the other possibilities might be far worse.
                    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                      #11
                      Some of us have written about these types of episodes. I have moments when I am driving when I will suddenly lose a sense of where I am and/or where I am going. Even within half a mile from home. I have learned not to panic and these episodes pass. For me they pass within a few minutes.
                      It is not uncommon to find people with MS describing such episodes.

                      You must have been scared. I was the first time it happened to me.
                      Linda~~~~

                      Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

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                        #12
                        After my BIG fall I halusinated about stuff, but never had that lost feeling.
                        Love, Sally


                        "The best way out is always through". Robert Frost






                        Comment


                          #13
                          Occasionally I feel lost and unfamiliar on a well traveled road. It lasts less than minute. I thought it was due to ageing, no?

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                            #14
                            I don't know if these episodes of what I thought was sudden memory loss are the same as the feeling of being lost.

                            A couple of times in the last 10 years or so I've lost my memory suddenly. The first time it lasted maybe 5-10 minutes, the second time only a minute or less, but it was unsettling to put it mildly.

                            I believe I was still aware of where I was but then I was at home both times. Just couldn't remember anything. I'm chalking it up to aging or MS. Just glad it didn't last.
                            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                            Comment


                              #15
                              I was having what my doctor called "seizures" after I went to see him because of it. I couldn't begin to describe them because it felt so strange, I couldn't put it into words. But he started me on a medication, and I've never had one since.

                              You need to describe to your doctor what you are feeling, and he may be able to know exactly what you need.

                              Good luck to you, and don't put it off. The worst suffering is suffering over something that could have been easily prevented.
                              "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                              Albert Einstein

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