tongue bitting,age and MS

[SalpalSally]

I am not sure you develop it at that age, however it is possible to have it and not be diagnosed until you are that old. I was 63 when diagnosed.

Exactly right!

[Virginia]

Howie, my MS was not "late onset MS". It was plain and simple failure on PCPs part to send me to Neurologist for more than 25 years before that. It is well documented that I was complaining of symptoms, however I didn't know what was wrong with me and did not have my records or the knowledge to go through them to put it all together.

I did not expect the PCP to diagnose MS, however with all the information he had, if he had just looked back to see what my visits were about, then he should have known that I had a neurological problem. When I went to a Neurologist I did so on my own without records and still was quickly (for MS) diagnosed. The PCP told me that I was the perfect picture of health and couldn't have anything much wrong with me. At one point he told me he thought it was a cyclical thing, that I only came to see him occasionally. Well, that was because he never did anything for me! Although I must have been quite a bit because when I read my records there was a ton of stuff in there.

[SalpalSally]

I bite my lip when I eat too!

[jendie]

my mom was dxd with MS at age 64, but the doc thinks she had had it for a while without realizing it.

[Howie]

On the other end of the spectrum, the first support group I attended had a girl that was DXed at 16. Can you imagine? She was severely disabled, but sweet as could be. Her mom and dad were her constant care givers.

[jendie]

I wish doctors would have dx me by 16 or even 20. I had a heavy disease burden by 29 and allergic to AB&C

[agate]

I wish doctors would have dx me by 16 or even 20. I had a heavy disease burden by 29 and allergic to AB&C

Does that mean that Rebif has been out of the question for you as well? I understand that Rebif is Avonex but delivered subcutaneously. Would one of the newer MS drugs be an option?

[SalpalSally]

I bite my lip when I eat too!

So I'm not clumsy,l just crazy! LOL!

[jendie]

Does that mean that Rebif has been out of the question for you as well? I understand that Rebif is Avonex but delivered subcutaneously. Would one of the newer MS drugs be an option?

I tried Rebif before the local Neuro had me try Avonex. He was just so sure I wouldn't be allergic to it since it was a different kind of injection.

[agate]

But apparently you were allergic?

I remember asking if any of the reactions to Avonex or Copaxone were allergic reactions--particularly the IPIR or immediate post-injection reaction that some people have with Copaxone.

The nurse on the line at Shared Solutions claimed that people aren't usually allergic to Copaxone. I heard the same thing about Avonex. An allergic reaction must be quite rare.

She did say that the IPIR is "like an allergic reaction."