New Diagnosis

[agate]

Did I miss the orgy?

Orgies R US! Glad to see you back, but now you see what happens if you stay away too long. You miss out on exciting moments here. Don't hold your breath but some day Howie might even post his MRI report again in case you missed it the other times.

[Howie]

Joan, I thought you had that report memorized by now. You should be able to recite it word for word.

[agate]

Joan, I thought you had that report memorized by now. You should be able to recite it word for word.

Of course I do! Who wouldn't?

But a few people just might have slipped through the cracks and not seen it already. This wouldn't be a good time to do a repeat post of it, what with a couple of new people hovering in the wings. It's not the sort of thing to be shared with newbies.

You might get reported for posting subversive or prurient material. It's bad enough with you running around in only a thong and some people posting pictures of naked birds (not a stitch on!).

[Virginia]

BBS, I was sorry to read about this. It does seem to act somewhat like MS and is even treated somewhat like MS. Glad your DH is going with you to the Doctor. Having two sets of ears is better than one. I hope this is not true, but if it is, I hope you do not also have MS with it. MS is very hard to diagnose even in people who have nothing else, so I am not sure how they are going to be real definitive about this.

If I were you and had the help of a husband I would go to every extreme to get to the bottom of what is going on. Even if he has to take you somewhere else. I understand that on your own you would be unable to go far, but with his help that is a different matter.

I am thinking of you and wishing you the best possible outcome.

[Howie]

Joan, believe it or not, I can't find my Classic MRI. You would think I would have it framed on my wall, but....

Last time I couldn't find it, you did. I think I had it on my laptop that died, but not this one. Help out a 49er, I fell down the shaft.

[Sunshine]

My immunologist thinks it's a lab error and recommends retesting in 4 weeks and then 12 weeks. He said with CVID my body barely makes antibodies and it doesn't make sense that it does make huge amounts of GAD antibodies. He said it's not impossible that the IVIG infusion had the GAD antibodies from several people who donated their blood. For example, people with type I diabetes have high GAD antibodies but don't have SPS. This makes sense.

I see the neuro Wednesday to discuss.

Immunologist did chest X-ray today due to cough.

[stillstANNding]

This sounds like good news.

ANN

[Sunshine]

Yes, my spirits lifted just listening to him say it.

[agate]

It could be a mistake? Let's hope!

I was about to say you could request the admin here to reopen the stiff-person syndrome forum that used to be available. One problem with that is probably that it's so rare that you might be the only person there but the rest of us here could keep on the lookout for news about SPS and if we found anything that might be of value to you, we could post it there.

But maybe we won't be thinking about that after all.

I won't start celebrating yet but it does sound like a difficult disorder to diagnose.

[Lazarus]

I have all my fingers crossed for you. Your neurologist sounds wonderful. How wonderful to have one who thinks about what is going on with you!

[Earth Mother 2 Angels]

((((((BBS)))))) ~

Crossing all my cross-ables! From what you've described, a lab error seems a reasonable explanation. Hoping your chest x-ray is all clear. Do any of your meds have cough as a side effect?

Love & Light,

Rose

[Virginia]

BBS, this sounds much better. See it pays to take hubby along. Take him next time to. This is too rare and new to you to take it all in without him around. Let him help.

[agate]

Joan, believe it or not, I can't find my Classic MRI. You would think I would have it framed on my wall, but....

Last time I couldn't find it, you did. I think I had it on my laptop that died, but not this one. Help out a 49er, I fell down the shaft.

How very sad. If there was one thing on this earth that I trusted would be around for a long time, it was your MRI report. I'll have to deal with this disillusionment somehow.

So far I haven't been able to find it this time. As I recall there were two--the time-honored one, then a later one. Can't find either of them. One problem is that the search function doesn't like a short term like "MRI." I tried "MRI report" but that didn't help.

[agate]

BBS, you may need some distraction while you wait for your Wednesday neuro appointment. That is probably why this thread seems to have veered off onto another topic (Howie's MRI report).

Since it seems to be irretrievably lost, we'll have to find some other distraction for you.

[Howie]

Yes, I didn't find search very helpful. Of course, I have the original, typed on paper, but would have to type it into this computer. And although I'm somewhat faster typing than I was back then, I'll have to think about it first. It would have to be a REALLY boring day!