Ocrevous scheduled Yay!!!

[Lazarus]

I was thinking of asking Doctor about it when I see him next month, but sounds very complicated. Maybe if I got into it I might feel differently.

I am going to ask if he thinks I can tolerate Rituxan.

Virginia,
Rituxan has almost no side effects for most people who take it. It is one of the safest drugs available to us. Really, it is not complicated. Infusion centers have very competent nurses. Don’t worry.

Some of us took IVIg and that is what we were talking about in terms of infusion rates. Even then, it is a matter of turning the dial up or down....again, don’t worry.

[Cherie]

Genentech announced a couple of days ago that they now have 4 cases of PML with Ocrevus. All were on Tysabri and JCV+ and became symptomatic after first dose of ocrelizumab . Here is a link to the announcement. Only registered and activated users can see links., Click Here To Register...

[agate]

For some reason that link isn't cooperating but the link in the other thread is OK. Here it is, and it's to a .pdf file.

Only registered and activated users can see links., Click Here To Register...

[ssusan]

Scheduled for July 23. Fingers crossed it does something this time.

[stillstANNding]

Good luck, Ssusan! I hope you get an energy boost that lasts.

ANN

[Pegakafarmgirl]

My infusion is next Tuesday the 31st,, at 7 am,, here at Unity Point Fort Dodge,, so glad I found this neuro,, then a busy week a head of me,, with company/family reunion/and a wedding,,but I'll handle it..

[agate]

Keeping fingers crossed for you, Peg. With a schedule like yours for that week, I'd be chickening out on some of those public appearances. I admire those who soldier on.

[Virginia]

Peg, what a week coming up. Hope you haven't volunteered to cook. Good luck with your Ocrevus infusion. I can't remember if you ever got to take the first two half doses and this is your first full one or if you never could get it scheduled at all. Hope you get a good boost of energy and some good lasting effects.

[agate]

ssusan must have had an infusion yesterday. Hope that went well.

[Sunshine]

Peg, good luck. I don’t know how you do it!!

[Pegakafarmgirl]

Peg, what a week coming up. Hope you haven't volunteered to cook. Good luck with your Ocrevus infusion. I can't remember if you ever got to take the first two half doses and this is your first full one or if you never could get it scheduled at all. Hope you get a good boost of energy and some good lasting effects.

its my 3rd time with this,, and I really am seeing results with it

[stillstANNding]

That’s good news, Peg.

ANN

[Howie]

Peg, that's great news! Keep it up!

[jendie]

While reading this thread I'm reminded that I'm almost 2 months late for my next Rituxan infusion. Falling and getting a concussion with amnesia can do that to a person. Tomorrow marks 9 weeks since my fall.

There are no general neuros that take my insurance within 70 miles of where I live. The MS specialist I see is 75 miles away. I better call his office about scheduling my next Rituxin infusion.

[agate]

Jendie, you've been through an ordeal. Not too surprising that the Rituxan infusion had to be delayed but what a shame that the doctors are so remote from you.

How have you been doing?