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    Yesterday I swam 23 minutes, 800 yards. Doing half of it back stroke due to foot problems: The freestyle causes spasms in one foot due to pressure of kicking during freestyle.

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      Today I swam 826 yards in 23 minutes. Nice and stiff legs and back by the end of the swim.

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        Today I swam 23.5 minutes, 800 yards. I have been having some back problems and thought swimming aggravated it. So I paid attention to my stroke.

        Breast strokedoesnt aggravate it, but it is so slow due to no leg action. I did a few of those today. Back stroke aggravated it

        Thought Freestyle aggravated it because I do not kick for fear of trigger a spasm as the kick causes the ankle, toe and shin muscles to stretch whenit hits the water.

        A friend this week with SPS said, “don’t fear the spasm”. WIth that In mind, I decided to kick enoughso as to not put strain on the back. It worked...

        So, DFTS is a good idea insome situations. But with walking, I will keep on the rollator Just in case I spasm, because that could cause a fall and a broken bone...

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          This morning I swam 1/2 mile in 22 minutes, a personal best, and similar to the rate I used to swim before SPS...

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            Today I swam 803 yards in 23 minutes.

            The legs are very stiff today, but I am still walking a fair amount, thankfully...This stiffening is just so weird and uncomfortable...I suppose many people with disabilities or serious illnesses, just can’t believe they are in this boat.

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              Today I swam 1/2 mile in 24 minutes, then grocery shopping, and now resting.

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                Today I swam 22 minutes, 800 yards, after two spasms before 4:30 a.m. Then grocery shop. Resting now.

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                  Yesterday I swam 800 yards in 22 minutes. Today I am in IVIG all day, and won’t be swimming in preparation for the infusion. So glad the hospital scored a batch of IVIG. They said its a one time event. So, its back to trying to get home infusion for next time.

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                    Today I swam 22 minutes, 800 yards, did grocery shop, cooked, cleaned it up...beat...have been suffering a lot lately...

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                      I swam 800 yards, went to the produce stand, home to receive a visitor, rested the rest of the day, for hours. Legs are just getting worse. .. I seem to be on my feet very little...

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                        This morning I Swam 1/2 mile in 24 minutes, went to the store for a brief shop, came home, went to a doctors office, rested 2 hours

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                          Today I swam 1/4 mile in 12 minutes. Had to get out as I woke up late, and DH had to go to work.

                          Will try to cook a simple dinner now. Home all day, thankfully no need to get to the grocery store or doctor.

                          I may try to surf Sunday. That’s the plan....take an ativan as preventive to spasm, DH will load me to the beach, friends will take me in the beach wheelchair and watch over me in the ocean. And we will celebrate all of the momentous occasions in our crew over the past month. Should be fun, if I manage not to spasm or ...

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                            Today I swam 800 yards in 22 minutes, then I rested, then an appointment and stop at produce stand and then Home. Then, rested in bed for 2 hours. ...

                            On Sunday I plan to meet up to surf with 9 crew members plus others, to surf and celebrate so many milestones that occurred in our crew over the past couple of months.

                            I made my get ready for surfing list. So far, I have accomplished reconfiguring the seat so that my longboard can fit in the car, putting my surfboard bag lying flat the length of the car, Taking out some superfluous space hoggers, take down my plastic saw horses so I can lie the board on them after surfing to hose off the salt really well.

                            I got down my beach bag and located my water container, zinc, sunscreen, ear drops, jellyfish sting drops, a bit of cash. In a few minutes, hoping to put the towels in the car and find my surfing outfit: rash guard, bikini, neoprene capri pant vs boardshorts, and after surf beach dress.

                            I already put a towel inside my car cooler for meds ai keep in the car and my take to the beach cooler for ones I keep on the beach. I packed my crew’s flag to attached to the back of R2D2.

                            Tomorrow I will pack up enough muscle relaxant meds for the day, and emergency spasm rectal Valium gel, where they need to be in the coolers. Set my alarms for Sunday morning wake up. Write out instructions to myself on when to take what.

                            Its funny, I am dreading this. It is so much effort physically in my crippled condition, and the whole scary thing of being out there in the water and on the beach. DH will be there. I can bail whenever I want.

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                                I went surfing today! I packed everything up over two days, so the morning of, there was little to secure. I took the Ativan at 6:30am since we were arriving at the beach at around 7:40.

                                I was pleased that the wheelchair was actually at the beach locked up in time of my arrival, so no wait was necessary. I also reordered how I did Linzess today so as to not have a very uncomfortable and potentially embarrassing time of it. So far so good.

                                By time DH pulled me to the beach and my crew picked my stuff up including board, two coolers for emergency med, and my surf stuff, it was 8 am when we paddled out. But first we had our celebration moment for one of the crew . It was fun!

                                Then we paddled out. The water was warm, 82F, air was 79 at first, partly sunny, minimal wind. The water was pretty glassy with waves knee to thigh high— perfect for me!

                                I lasted 2 hours in the ocean with only a 5 minute break at the end before paddling back out for a few minutes.

                                I had 4 terrific waves, did a great pop up and felt the floaty feeling as I rode the wave standing for a decent long ride. I love that the locals hoot and holler— they know what’s going on, and have watched my worsening and determination.
                                And theyre older too, so they get that part of life.

                                I couldn’t believe how long I could paddle around. Our crew spotted a manatee and an eagle ray cruising along the lineup.

                                So, all I all, it was a super fun day, one which I hope to do again soon if the waves, friends and DH line up :)

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