Keep Moving check in

[Sunshine]

IVIG all day today.

[Sunshine]

Swam 30 minutes, half mile.

Phone calls to businesses and a Meeting have left me a Stiffening mess. Tomorrow is another day.

[Sunshine]

Swam every day this week.


Today I swam 31 minutes, 1/2 mile. Rested an hour: and THEN, for the first time in two years, with DH there to rescue me, I walked down the @200 step path on pine needle covered pathway in the woods to see and to drink in the beauty of Woods.

I brought a very light weight disability stool with me, so I could sit down immediately if necessary. It came in handy.

[Sunshine]

Today was big. I swam 30 min 1/2 mile, did 2 extra flights, a lot of extra walking too, to accomplishment important task.so far so good

[Sunshine]

Brrr! We are getting cold in florida, the air dropped to 68 last night and was only 83 during the day. Thus, the pool temp was a brisk 77F. Likely will switch to the public pool this week. Did swim 30 minutes, 1/2 mile today in light neoprene.

[Sunshine]

The pool rose to 79, more tolerable especially with neoprene!
I swam 31 minutes, 1/2 mile plus 80 ft.

[Sunshine]

I swam 1/2 hour, 30 minutes today, 79F pool.

[Sunshine]

Today I swam 31 minutes, 1/2 mile plus 52 Yards. Trying to take it easy on legs now...Don’t like the wiggling the shin muscles are doing...

[Sunshine]

Today I swam 1/2 mile plus 25 Yards 30 minutes, in a 77.5F pool, 70f air. A cold front is coming.....

[Sunshine]

Today I swam 30 minutes for 1/2 mile in my 77F pool. It was about only 62 outside, so it got chilly despite lightweight neoprene. I think I will try the public pool unless the pool warms up.

[Sunshine]

Today I employed my best strategy to swim in the public pool. Timed it with my medication dosing ....Lots of steps in open area are scary but doable. Pool was a warm 81 and I swam 1/2 mile 31 minutes. A muscle stiffening slowed down about two minutes. Then the walking, sitting wet In a freezing cold locker room with lukewarm showers on a pathetic chair.

But it happened! And, I was able to drive easily. .... round two tomorrow.

[Sunshine]

Today I swam again in the public pool. 30 minutes, half mile. Then the walking and cold locker room. There was a pool exercise class going next to my lane. A microphone and loud high tempo music. These are not good for Stiff Person Syndrome. I could feel my legs stiffen. But they didn’t spasm.

They put grab bars up in the closest stall.( The stall is too small for one in a wheelchair, but they have a wheelchair stall @30 steps down. ) but they didn’t put a handicap placard on the door of the closest stall, just grab bars. They’ve had a year.

So, someone had commandeered it and was changing in there... not to be mean, just out of ignorance. ...so, sunshine had to use the stall, and finally asked if they were almost done. The person came out, and apologized. Once again I went to staff and reminded them about putting a placard up. By time it’s up, I will be swimming at home, but it will help the next person.

[Sunshine]

Today I swam 1/2 mile st the public pool and walked over 200 steps to and fro the car, the locker room, the pool. Not to mention dragging a chair into the shade so my meds weren’t in the sun, and into the shower. GEESH.

I cornered the manager. All kinds of excuses for not putting a placard on the stall that says handicap. So tired of te old “Can’t do” of government employees.

The loud PA was shouting st my land. Not so good for SPS stiffening. Oh well. At least I can still swim....

[Sunshine]

Today I swim a half miles in 30 minutes. Some stiffening during and after, but okay so far. It’s a lot of walking too, one of th legs is 100 steps. It takes great courage to do this...glad I can still do it....

[stillstANNding]

I wish you had a better place to swim. Is there a college or a JCC or Y around the area? Our JCC is very fancy and equipped w a sort of elevator that lowers the swimmer into the water. I haven’t used that pool but friends have.

ANN