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    #31
    Tim, I didn't mean to dismiss medication entirely. I believe it's well established that there are meds that help a number of psychotic conditions--provided the people on them keep taking them, of course. I've heard people with schizophrenia who were troubled by hearing voices say that the meds helped to rid them of the voices, and if they stopped the med, the voices came back. Sounds to me as if those meds do work.

    jingle, I don't like winter cold and snow and ice either. I can't imagine what state of mind I was in years ago when I would go out every day to work, walking about a mile sometimes when it was 19' below. I can't imagine doing that now. That was in Illinois. North Dakota I'm sure was far worse.
    Last edited by agate; 01-18-2025, 05:42 PM.
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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      #32
      Originally posted by agate View Post
      Tim, I didn't mean to dismiss medication entirely. I believe it's well established that there are meds that help a number of psychotic conditions--provided the people on them keep taking them, of course.
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      Yet inside there is this perpetual nagging doubt;
      the feeling we are possessed by a 'subtle lack of togetherness''.

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        #33
        It's good that alternatives to meds are being explored. Isn't it also possible that some of the many cases of treatment-resistant schizophrenia might be people who were misdiagnosed as schizophrenic?

        I've known of several instances where doctors diagnosed paranoid schizophrenia after spending only a short time talking to the patient (20 minutes or so). I would think that a diagnosis that is clearly very complex couldn't be made in such a short time.
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        • Prot
          #33.1
          Prot commented
          01-19-2025, 02:21 PM
          Editing a comment
          Using Copilot

          How often does an initial diagnosis of schizophrenia or schizoaffective turn out to be a misdiagnosis

          Misdiagnosis rates for schizophrenia and schizoaffective disorder can be quite significant. Studies have shown that about 39% of patients with severe psychiatric disorders are misdiagnosed. Specifically, schizoaffective disorder has a particularly high misdiagnosis rate, with 75% of cases being misdiagnosed.

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          Can treatment resistant schizophrenia or schizoaffective actually be a case of schizophrenia or schizoaffective that's been wrongly diagnosed?
          Yes, it's possible. Misdiagnosis can occur, especially since the symptoms of schizophrenia and schizoaffective disorder can overlap with other mental health conditions2. Conditions like bipolar disorder, major depressive disorder, and even certain personality disorders can sometimes be mistaken for schizophrenia or schizoaffective disorder.

          In fact, studies have shown that up to 51% of schizophrenia cases and 75% of schizoaffective disorder cases are misdiagnosed initially. This can lead to inappropriate or delayed treatment1. Seeking a second opinion from a specialized clinic can help ensure a correct diagnosis and appropriate treatment.

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          In my opinion it's also possible for schizophrenia or schizoaffective to be secondary problems arising from another primary problem. For example my daughter has suggested, and I agree with her, that my schizophrenia/schizoaffective developed due to the stresses of being a child and teenager with undiagnosed autism.
          Last edited by Prot; 01-19-2025, 02:34 PM.
        #34
        I would go farther out on a limb and say that sometimes people with neurological disorders like MS get misdiagnosed as having a psychosis like schizophrenia. I know of some instances where that happened.

        Some neurological disorders present themselves with psychotic or quasi-psychotic features.

        I wish that the diagnosing doctors would be far more careful about what label they pin on people. Sadly, anyone diagnosed as psychotic is apt not to be taken seriously by anyone and might go to doctors repeatedly with legitimate physical symptoms and signs and be too readily dismissed as "crazy." This happens all too often with MS.
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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          #35
          I miss going out by myself to have a full English breakfast.
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          Yet inside there is this perpetual nagging doubt;
          the feeling we are possessed by a 'subtle lack of togetherness''.

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            #36
            Do people really eat such substantial breakfasts? Tim, I'm sorry to say I could identify only 3 items on that plate. Maybe you could identify them?
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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            • Prot
              #36.1
              Prot commented
              01-20-2025, 11:57 PM
              Editing a comment
              Mushrooms, black pudding, sausage, tomato, baked beans, bacon, fried egg, toast, hash browns

              Some do indeed eat such substantial breakfasts. Every now and then I 'd have a full English breakfast that size. I wouldn't go to the cafe every day to have a full English breakfast. It was a usually once a week , very occasionally twice a week, thing.
            #37
            Tim, after a breakfast like that do you eat again that day? I've heard a saying that is something like "eat breakfast like a king, lunch like a prince and supper like a pauper".
            Virginia

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              #38
              I had never heard of baked beans for breakfast, and now I finally know what black pudding looks like. Thank you, Tim, for explaining. I'm all for hearty breakfasts too but nowadays draw the line at anything that looks like real cooking.
              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

              Comment

                #39
                Originally posted by Virginia View Post
                Tim, after a breakfast like that do you eat again that day? I've heard a saying that is something like "eat breakfast like a king, lunch like a prince and supper like a pauper".
                I've heard that too. I do tend to eat again that day. Sometimes I'll skip lunch. I have problems knowing when I've had enough to eat.Ditto being prone to mild dehydration.

                Only registered and activated users can see links., Click Here To Register...
                Yet inside there is this perpetual nagging doubt;
                the feeling we are possessed by a 'subtle lack of togetherness''.

                Comment

                  #40
                  Is my presence here preventing you all from posting? If so,I'll stop.
                  Yet inside there is this perpetual nagging doubt;
                  the feeling we are possessed by a 'subtle lack of togetherness''.

                  Comment

                    #41
                    Originally posted by Prot View Post
                    Is my presence here preventing you all from posting? If so,I'll stop.
                    Definitely not at least so far as I'm concerned! I'm sorry there is so little activity here but I could plead that it's not my fault. Sometimes I think it really is my fault though. Maybe my presence on a message board chases people away because they find me depressing, or they're afraid I'll die on them, or something like that.

                    In less pessimistic times, I try to realize that people have just moved on--to other formats, platforms, devices. They're on their phones sharing fun photos with their friends, talking to everybody they know. Message boards look quaint and old-fashioned to them now that they're in the world where they can make their own movies and whisk them to their friends and family.

                    Tim, your use of "you all" is interesting because there are really only about 3 people here regularly besides yourself--and there are about 3 more who very kindly check in on this forum but their "usual" forums are elsewhere on BrainTalk. You yourself are one of those who began on another forum, and I'm glad you decided to post here on this one because we need posts here. We need to look as if we're still alive.

                    Which we are.

                    I hope Virginia will be well enough to be back here soon.

                    Yesterday for me was much too busy what with fire alarm testing in this building, and my need to give a grocery list over the phone during the testing, followed by laundry, followed by ironing, and a number of other problems that are too boring to mention.
                    Last edited by agate; 01-28-2025, 08:31 AM.
                    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                    Comment

                      #42
                      agate Thanks for reassuring me. I don't find you depressing. You just look at things realistically. I first took part on Braintalk circa 1998.It was so much livelier then. I can't remember precise details, but I think a series of bad decisions and bad events saw Braintalk haemorrhaging users to a very large degree. I have vague memories of neurotalk. I remember clouds z from over 25 years ago!

                      I've been having bad bowel problems resulting in lower back,lower abdomen, and pelvic pain. It's been OK today up until 15 minutes ago but has decided to raise its ugly head. A strange thing happened yesterday. I got a letter re an unclaimed life insurance policy of a great aunt who died in 2008. My sister got a letter. too. She phoned about it and is convinced it's genuine . I'm not sure. But then I've always been more of a 'glass half empty' person than her.
                      Yet inside there is this perpetual nagging doubt;
                      the feeling we are possessed by a 'subtle lack of togetherness''.

                      Comment

                        #43
                        You've been here longer than I have, Tim. I found this place in 2001--but I did look back over some archived posts and noticed how different BrainTalk was in its earlier days. It was never a dull moment back in the day, wasn't it? We were just finding out what could be done in real time by using this kind of connectivity here. I recall a woman whose child was lost, and some of the more active and knowledgeable members got on it and helped her to find the child. There was considerable excitement about it.

                        And I probably have remembered it wrong!

                        Bowel problems are the pits, IMO. I spend a lot of time just on cleanup, and this is pretty bad news if it's a day when I need to get to a van ride by a certain time.

                        Then there is the physical discomfort caused by an overactive bowel. I won't prattle on with my complaints about bowel problems but I'm sorry you've been plagued with them.

                        As for the aunt who passed away in 2008, since that was about 17 years ago, I wonder. Estates often take quite a while to get settled but I don't know if they ever take that long. I've heard of people who are notified of some such bequest and it turns out to be bogus. To find out more, they often have to put up a processing fee or incur some other expense. I think you're very wise to proceed with caution but it would be wonderful to come into some funds unexpectedly.
                        Last edited by agate; 01-28-2025, 05:16 PM.
                        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                        Comment

                          #44
                          Tim, my not being here as much has nothing to do with you. I was very banged up in a fall a little over 2 weeks ago. My brother and I were discussing it this evening. I told him how disappointed I was that I was not back to normal. He said it might take weeks since I had a concussion.

                          So, I will be back more often and I hope it will be in a short time.
                          Virginia

                          Comment

                            #45
                            How nice to see you back, Virginia, even if it's only briefly! "Very banged up"? This doesn't sound good at all.

                            Take care there and please don't do more than you genuinely feel up to.
                            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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