Almost every new person I meet knows someone with MS
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Love, Sally
"The best way out is always through". Robert Frost
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Yes, but do they know much about MS?Originally posted by SalpalSally View Post
Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel RuizComment
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Good question!Love, Sally
"The best way out is always through". Robert Frost
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Go Vicky!!
ANNThere comes a time when silence is betrayal.- MLKComment
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Best wishes for tomorrow, BBS, I'm sure it will go well!
Make sure they keep the flow rate slow the first time, as side effects can occur if it's run in too fast. I know they start it slow, but, for the first while, it's better to take the extra time to infuse it slower until you know how you're adjusting.
Hope you feel great afterwards, I know people with immune deficiency that are ready to go dancing right after their IVIG tx, they schedule their infusions for Friday so they can be off enjoying Friday night and are able to enjoy a jam-packed weekend! I hope you feel a boost too! A suggestion is to keep a log, good to have a written symptom record to see if you notice changes when you review it and compare later on.
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Good advice from Suze about keeping a log. We will be waiting to hear from you.VirginiaComment
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Good luck, BBS! We may not hear from you if you're surfing somewhere but details about how it went would be much appreciated.SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.Comment
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Okay on all accounts. I will be sure nurse washes her hands, and ask about slow infusion. Betting it's there usual thing. Doc told me decades ago a patient got a stroke because infused to fast.
If you don't here from me by Tuesday morning,not means I am too sick from it to get online.appt is at 9:00 today.Comment
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I hope it's going well for you....Huggggggs!Love, Sally
"The best way out is always through". Robert Frost
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I got through it well. It only took three hours. At first, my blood pressure kept climbing up to 146, and that was concerning. The lovely nurse called the doctor who said that can be normal occurrence, and to stop it if it went above 160. My normal is 90-110. It eventually evened out at 126-- yay!
No side effects at all so far since the bp came down, other than exhaustion which could be from first time jitters....I go back in two weeks. I sure hope the treatment does some good :)
My angel friend was a real trooper and it was great to have her. She wants to go again, but I think I can fly solo now. We'll see.
Thank for all your support!Last edited by Sunshine; 06-13-2016, 09:50 AM.Comment
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Hi BBS,
Whew! How nice that it wasn't the 6 hours you'd been told it might be and especially nice that you came through it doing well!
I'm betting the exhaustion is first time jitters.Last edited by agate; 06-13-2016, 09:53 AM.SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.Comment
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Woke up recovered from the infusion. No change in MS yet.Comment
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At least you've got past the first infusion, and the others are likely to be much easier just because you've already been through the first one.SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.Comment
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Yes, now I won't be anxious about it. I asked for the same nurse, a young, sweet and bright young woman. I like that she sanitized her hands in front of me each time. And I like she called the neuro when my blood pressure climbed.Comment
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