I start IVIG

[Sunshine]

Tonight I notice my feet could feel the coolness of the floor, and I can feel more sensation on ankles when I rub them. Could be my imagination, not sure.

[Virginia]

It might take a treatment or two more before you can really tell a difference as far as the MS is concerned.

[Lazarus]

Tonight I notice my feet could feel the coolness of the floor, and I can feel more sensation on ankles when I rub them. Could be my imagination, not sure.

Great! It is probably not your imagination. IVIG works immediately. If it is going to help you the benefit is immediate.
That's why your neuro set up the schedule he/she did. My aim was always to fill the tank before it hit empty. When the IVIG was always in my system I did well. When time between infusions was too long I could feel the benefits waning.

I do rituxan now. When time is too long between infusions I start to relapse. We just fiddled with that schedule to avoid down time.

Glad all has gone well. Most infusion centers are cancer centers. At least around here. Did you find most patients were cancer patients? The community at the center I use is a spectacular one.

Best wishes

[Sunshine]

It was nearly empty, maybe due to it being Monday morning. The two others looked like they had cancer, though.

How often did you do your IVIG Laz?

[Lazarus]

It was nearly empty, maybe due to it being Monday morning. The two others looked like they had cancer, though.

How often did you do your IVIG Laz?

Hi,
I did my infusions every other Monday. It usually takes an hour for a 10g bottle to be infused. I did 7 bottles each time and did that twice a month. So, I did 140G each month.

Best wishes

[Sunshine]

So, it took an hour for a bottle and you did 7 bottles. You were there 7 Hours then?

Next time I will ask about how many grams I get. Am wondering if they start out smaller and build up.

[SalpalSally]

Woke up recovered from the infusion. No change in MS yet.

Glad you woke up...LOL!

[SuzE-Q]

Glad it went well, BBS, and you were a warrior princess!

[Lazarus]

So, it took an hour for a bottle and you did 7 bottles. You were there 7 Hours then?

Next time I will ask about how many grams I get. Am wondering if they start out smaller and build up.

There is not a standard dosage. I never met anyone who got as much as I did. At the time it was an MS researcher named Volmer at Yale New Haven who put me on it. But, I got 7 bottles every other Monday for 8 years. That was 140g each month. Infusions days lasted 8 hours. I limped into the center and danced out. It was that clear a benefit for me.
I am one lucky kid!

[Sunshine]

Wow!

I saw Dr Vollmer for a second opinion at Yale in 1999. I thought he was a terrific neurologist.

[agate]

Would that be Dr. Timothy Vollmer? I've often seen the name on research articles and in articles about MS. I believe he has an excellent reputation from everything I've heard.

[Sunshine]

Yes, Timothy Vollmer, formerly at Yale, then Barrows in Arizona, now at Colorsdo.

[Sunshine]

I have felt very well all day today, best I have felt in at least a year. Worked 6 hours, grocery shopped, cooked supper and did payroll, and don't feel a need to lie on the couch for hours,

If it continues the next couple of days, then I will assume it's the IVIG, and not just a random fluke.

[SuzE-Q]

I have felt very well all day today, best I have felt in at least a year. Worked 6 hours, grocery shopped, cooked supper and did payroll, and don't feel a need to lie on the couch for hours,

If it continues the next couple of days, then I will assume it's the IVIG, and not just a random fluke.

So great to hear!

Were you left with a bruise at the IV site?

Enjoy the extra energy!

[Howie]

That's great news. What's for dinner? HEY, I can' help it!!!