I start IVIG

[SalpalSally]

Yeah, I have SPMS now, so probably not. Bah!

[Howie]

But you could still ask your doctor. I don't follow MS research these days, but it's worth a try to ask, they should know.

[Sunshine]

Last night at 7:30 pm I was able and willing to go outside and fly a drone with DH. Then, I swept up sand on the garage floor for five minutes. Usually by then am lying down, counting the minutes until I can go to bed.

This could be IVIG related progress...

[SalpalSally]

Yeaaaaaaaaaaaa!!

[Virginia]

BBS, keep letting us know. This sounds wonderful. To feel like doing things without forcing it would be "joyful".

[Sunshine]

At work today, I felt energy I have not felt in 12 months.

[agate]

This is such good news! Guess we all have to just keep trying this and trying that until we find something that works for us. Looks as if you may have found that something, BBS.

[Sunshine]

It's hard to say yet. It could be the effect of the infused antibody fighting a sinus and lung infection I have not been able to beat the past 12 to 18 months due to low antibodies.

It could be that and improvement in MS.

And, perhaps some of the MS symptoms may have been a long pseudo flare due to chronic infection.

Who cares! I will take the improvement no questions asked!

Can't wait until next infusion in 5 days (but who is counting!)

[SalpalSally]

I think I'd like to have some of that stuff!!!

[Virginia]

Sally, ask to see a Neurologist (get someone to take you to one away from where you are) and try. That is all you can do. Just try.

[Sunshine]

Coughing 14 months now. Today the coughing is way better. Didn't need a rescue inhaler today.

[Virginia]

If it cleared my sinuses that would be a big help. I am with Sally, I am beginning to want some of that "stuff". So happy for you BBS!

[Lazarus]

Coughing 14 months now. Today the coughing is way better. Didn't need a rescue inhaler today.

Hello,
It is wonderful to experience improvement. I really do know what you are talking about. For some of us, the IVIg infusions is like Popeye's spinach.
I wanted to mention to those who are eager to ask their doctors about IVIg that it is not curing MS. It is like all the symptom relief meds we take. We have to keep taking it and its effects wear off. Then we are what we were. Until the next infusion.

After 8 years I needed to switch to something else because the IVIg stopped showing any effect. But those 8 years allowed me to keep teaching and have a life not dominated by my progressing MS.

This is a good thread...good and hopeful news.

[SalpalSally]

How long do you stay on it and does it continue working after you stop?

[Virginia]

Sally, Linda says it stopped for her in approximately eight years, but she had eight good years. If we knew it would do the same for us it would be worth a try, but we just don't know. I am already on one medicine and doubt that my Doctor would change me now, but you are not on anything and would have nothing to loose (as I see it) by just asking your Doctor to let you try it. I would not ask the Doctor where you live, I would want to see a Neurologist away from there.

I have no idea if this is the same thing. I have a neighbor who has a kidney problem and she has refused dialysis. Her Doctor sent her in for two bags of Plasma. She said it gave her more energy was what she got out of it. Linda and BBS is this the same as IVIg, or do you think it would just be more like a regular blood transfusion?