OT December Chit Chat

[Cherie]

Rough night. No spasms, but awoke at 3 am drenched in sweat and having to pee NOW. Got into the R2D2 to prevent spasm in the 10 ft walk to bathroom. Couldn’t void. And the bladder no longer felt full.

Recalled Cat’s bladder issues and wondered if it was a bladder spasm.

Imagined Could end up at ER at the local awful hospital 5 minutes away. Terrible hospital. F rated for infection. Good one is 25 minutes away where my neuro is on staff as all my records are there too.

But DH would’ve had to drive me. Because ambulance will only take to the closest (terrible) hospital. GEESH

Lay there for an hour, finally got up to make some food.

No spasms in legs, but a rough night indeed.

Will watch the bladder issue.

Its not a bladder infection, that I am sure of.

This disease is relentless.

Today I am home all day. DH will help out in between taking care of the moving related work, mowing grass at both yards. Realtor put the sign up yesterday! Photos this week, and then it will be on line in time for snowbirds and tourists.

Sunshine,
The more IVIg I have , the worse the spasms and bladder emptying become lately. I just think it is messing with my immune system more than it is helping. I know you are getting it for something other than MS but it is worth having this discussion with your neuro.

[agate]

Hello out there,, hope everyone is doing okay,, between floods/fires/ sickness, we have had enough,,

Went to the visitation,, lots of people , and I never seen so many flowers,,Sharma hates flowers too lol !!,, then we ordered a pizza, because I been cooking/baking all morning,, for the deer hunters tomorrow,, and we have impending rain turning to snow this week end,,I made a double batch of chicken noodles,, { I cheated } frozen dinner rolls,, cookies,pumpkin bars,, cinnamon rolls, no one goes away hungry at my house,,

well better go,, later,,

Sigh--everyone probably ate all of that up but this kind of menu is apt to bring people like me long distances. If you see me slogging through one of your cornfields there or riding in on one of the sacred cows, maybe you could find half of a cinnamon roll left somewhere?

[Pegakafarmgirl]

Sigh--everyone probably ate all of that up but this kind of menu is apt to bring people like me long distances. If you see me slogging through one of your cornfields there or riding in on one of the sacred cows, maybe you could find half of a cinnamon roll left somewhere?

I'll keep a eye for this Mizz Joanie,,this I get see,, lol. and I ended up making another batch of cinnamon rolls, we have some left,,tomorrow, we cut up and seal 7 deer,, we have help coming, so no worries,,Joe and I will not do this alone, way to much,,

Renee always good to see you here,,take care

[stillstANNding]

I am worried about Cat. She would be here if she could. Very worried.

ANN

[Catdancer]

Hey, don't be concerned....I'm here. Tucked into my tiny room here at the nursing home. Things are improving. Vision is still pixolated....sort of broken up, double if I sweep too fast from side to side. Legs
seem stronger, but I don't know if that is wishful thinking or real....

Weekends here are quiet. ..no one seems to have visitors, no therapy done. We all just sit around waiting ......for something to happen. It never does.... We had 4-6 inches of snow in this region, too, which stopped visitors.I

I have my kindle, so read a couple of books, watched a couple of movies, got caught in a "endless loop" of old family feuds games, and laughed a lot.....the packers football game was on loud....no one watching....so I stayed there n my room.

Now that the roads are plowed I'm expecting TC to come later with clothes. I didn't come with much and need to replenish.....

PT and OT supposedly twice day, is On my schedule for today...each is supposed to be an hour......really closer to twenty minutes.........

[stillstANNding]

Hello Cat and thanks for the update. Glad that some things are improving.

Can you ask for more PT and OT? Get what you need and can tolerate. Maybe less now, more later. If it’s only 20” a day make sure they only get paid for that amount.

ANN

[agate]

So glad you checked in!

It's a disgrace the way things come to a standstill on weekends and holidays. I agree that speaking up for more of the OT and PT would be a good idea. Sounds as if they're getting away with slacking off.

[Lazarus]

Thank you for checking in. You are so important...to me and to the rest of the board too. You are an important voice to us all.
Hoping things go well for you.

[Virginia]

Cat, we are all missing you. I just hope you keep getting stronger. You are very much needed here. I hope TC is doing alright and that he will be able to get over with more clothes today. How is the food there, now that you have had time to decide? I know it is not like it was in the hospital, but then you didn't feel like eating it. Hope it is good and that TC brings you some treats.

Glad you can at least read some books and while away a few hours like that.

Like Ann, I had started to get concerned when you didn't check back in with us.

[Catdancer]

TC came this morning, brought clothes, tea bags, and sub sandwiches, so he got a few gold stars... Watched as the PT guy, using a regular stand lift (like the one we have at home) to get me upright....And moved from bad to wheelchair, back to regular chair, etc. All well tolerated. And then excersize with the OT lady...arm strength. Did pretty well til we got to the side to side stuff......still disorienting.

Their goal is to get me back to where I was before this crashed.....standing 2-3 minutes supported by the stand lift, able to...while seated in my wheelchair....lean over without pitching out and summersalting out of the chair.....

I've not heard from any doctors, no follow up or direction other than what I've been able to glean from the PT guys...so I'm just rocking along....

[SuzE-Q]

Sounds like a good plan, Cat, hope they spend the full amount of time doing exercises, etc. and you can continue with some on your own when they aren't there.

Sounds like TC is taking very good care of you too!

[agate]

Good for TC!

I'm glad that the staff is putting forth a bit of effort towards helping you to improve. The doctors you haven't seen--would those be your regular doctors, or is this one of those places where you have to see "their" doctors?

[agate]

Happy Hanukkah!

[Lazarus]

Nice! I love lighting the candles.

[agate]

It's a lovely ceremony!