OT Febuary Chit Chat

[Sunshine]

The procedure was easy and painless.

But now I am left with an odd mixtur of vision challenges....

[Catdancer]

Today I had my first cataract surgery, So, I was told to take an Ativan. Ativan gets rid of all the stiffening. After the procedure, i was walking normally. I didn’t need to sit down, was able to stand like a well person. It was such a mood lifter!

The SPS symptoms are slowly creep;in back in. OH well.

In the meantime, I am not thrilled with this first eye. Recheck is in the morning...

it

Give it a couple of days. Took me about 3 days before I felt comfortable with what I was seeing. But indeed, I felt fine after my surgery, no complications, no aftereffects. (I wasn't up walking, though. :) )

[agate]

Are some of those vision changes the kind of thing that will go away after some time passes? I believe that sometimes vision is a bit out of whack until the second eye has had the cataract removed. Also, I've heard that it takes about 8 weeks for complete healing.

[Earth Mother 2 Angels]

((((((Sunshine)))))) ~

After Jim's cataract surgery, he wore a patch for the first day, and then we applied drops to his eye several times a day (antibiotic, steroid, and something else). It took a week for him to have improved vision, and a month before he was able to see well enough to pass his driver's license test.

It's not an immediate fix. It takes time. I hope that's the only issue you're facing now with your vision.

Love & Light,



Rose

[Cherie]

My first eye was never right cause the doc put the lens for the right eye into the left. Second eye with the proper lens was immediately useful but I have never adapted to the wrong lens and need prescription glasses (progressives) or multi-focal contacts to read or use the computer. Distance is great in the right eye but not in the left without correction.

We went out for dinner tonight for valentine's day since we have another commitment tomorrow. Then we went to see "Green Book" (Only registered and activated users can see links., Click Here To Register... ) . Based on a true story, this chronicles an 8 week concert tour through OH, PA. Iowa, Indiana and then through Kentucky and into the deep south. The year was 1962. The musician was piano virtuoso Dr. Don Shirley , the first black man to attend the Leningrad School of Music. Tony is hired as his driver and body guard on this trip through the segregated south. These two men, so very different in every conceivable way, became lifelong friends until their deaths within months of each other 5 years ago. It is well worth the watch although I was not all that interested when I saw the trailer. The music is phenomenal and the racism palpable.

[nuthatch]

Rained all day today, but the day was brightened again this year by our secret neighborhood Cupid. Last year on Valentine's Day, we found someone had tied a helium filled heart shaped mylar balloon onto each mailbox on our street, sometime early in the morning. This morning it was pouring rain but Cupid snuck out to spread the love sometime in the afternoon during a break in the rain! Each mailbox has a pretty, shiny, pink mylar balloon floating over it! What a sweet gesture. We live in a great neighborhood!

For some reason I could not get onto the forum today. Hope everyone had a day of sweet surprises.

[Earth Mother 2 Angels]

((((((Hugs to All)))))) ~

nuthatch ~

No one could access the forums yesterday. Mike posted in Forum Feedback with an explanation of the downtime:

Only registered and activated users can see links., Click Here To Register...

I'm so grateful that we're back up and running!

What a lovely gift from your neighbor~ spreading Love!

Love & Light,



Rose

[Sunshine]

The eye is improving. I now have 20/30 in the right eye. Will need progressive glasses so I can read and to tweak the far vision, although doc said its good enough for driving and indeed it is.

The challenge will be to limp along with reading after the second eye is done, until the new glasses can be made and I can pick them up as the optical is 25 minutes away. This will be a distant memory in a year I am sure.

Swimming can restart Monday until two days before the next eye, then another 5 days off.

My doc is known for his surgical skills, other eye docs fly in from up north, as do family members to get their cataracts done.

I never minded wearing glasses, and look forward to them again. What i minded was the cataract casted an amber color on everything. Now, that eye sees true colors. Plus, that eye couldnt be corrected better than 20/50 which is the absolute limit legally for driving, so I anticipated not being able to renew driving license in the future without fixing the eye.

[SuzE-Q]

Sunshine, there's no abstract available for this, but it may be worthwhile to order the full article to see if it's of interest to you.

Only registered and activated users can see links., Click Here To Register...


Prim Care Companion CNS Disord.
2019 Feb 14;21(1). pii: 18l02360. doi: 10.4088/PCC.18l02360.

Progressive Encephalomyelitis With Rigidity: Stiff Person Syndrome Variant Associated With Multiple Sclerosis.

Naik S1,2, Kolikonda MK2, Lippmann S3.

PMID: 30762977 DOI: 10.4088/PCC.18l02360

[stillstANNding]

That does not sound good, Suzy.

Nuthatch and all, please remember that agate’s MS Speaks board is available to us as a lifeboat should BT be unavailable for any length of time.

ANN

[agate]

Thank you, ANN!

Some people contacted me by message or e-mail, and I replied. I don't have e-mails for some people here but if those people want to provide an e-mail address to me or to someone here, it might be a way to be informed if BrainTalk goes down in the future. Or become the Facebook friend of someone here so that you can send a message.

[Sunshine]

This is what my friend with a stiff person syndrome was diagnosed with last week. It is a horrible disease. So far, my pattern is not consistent with them.

There have been cases with this disease with a person goes into respiratory arrest. When the patient is rescued, The Stiff person syndrome is gone. Very strange. Rituxan is sometimes used for this version and it usually fails. But in the small number of successes, those people see a complete cure. Very strange.

[Sunshine]

Suze, that being said, I just sent the link to the article to my doc in case he thinks it might be pertinent to my care. Thanks

[Jeanie Z]

:) Happy Belated Valentine's Day to all. I got a beautiful card and flowers from Andy. From Jim also a beautiful card. From my new friend Liz I got two hair bows for my ponytail and a balloon. Then last night my friend Cheryl came with a yellow rose and a heart shaped lollipop and a nice visit.

Yesterday I went to the hairdresser then to my doctor. He wrote all 6 months of my RX 's and also started the physical therapy at home procedure with my insurance. He say it takes about a week. I emailed Agate when I could not access this board and Rose's one for Jim and one for Jon.

Thank you to the moderators for getting us back up. This is truly a lifeline for me. Jeanie :)

[agate]

This place is a lifeline for many of us, I think. I've been a regular here for 18 years now and it's hard to deal with finding that this board has disappeared all of a sudden.

I was remembered at Valentine's Day too! Since it was a Thursday, that was the day for groceries to be delivered by the volunteer organization, Store-to-Door, that serves hundreds of people locally. The young woman who delivers brought me a handmade card and a bar of very unusual Green Tea Soap that I've already tried and really like.