Announcement

Collapse
No announcement yet.

What's Happening in our Caregiving World?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Tomorrow Hank has a "date" with the Mental Health department of the VA. I am going to ask the social worker to help me to get the papers filled out for my respite care. I think Hank is experiencing "Sundowners" He get so bad at night. I am now on the overnight cycler and have a 20 foot range from the machine. If I ask for something I can't reach he tells me to unhook and get it. Well I can't, if I do, I have to start the treatment from the start, which is over 12 hours. When I am hooked up I can get to the bathroom, the kitchen, my computer room (and I'm not suppose to sit up) and our bedroom. Oh ya the front door. Which was good when I was dogsitting because Hank wouldn't let the dogs out. I let them in & out there. I pray for y'll often with all the trials you are going though
    I'm just where God wants me to be, not one step ahead nor one step behind........

    Comment


      Hello all,

      I'm sorry I haven't kept up with what's going on in your lives, even just of late

      I don't know where to post anymore having Vascular Dementia. I've been here before when feeling better. In last stages of this damnable disease, having sometimes 2 strokes a week, sleep at least 1 (or 2) full days during week, hallucinating, bouts of depression and list goes on.

      ALZ is a disease where the person doesn't really know/remember what's going on which is hard on family.
      VaD the person knows exactly whats going on all the time which towards the end can drive me nuts, especially the hallucinations.

      I didn't/don't know where to post anymore....you are all caregivers and you all have my KUDOS!!. It's a daunting task. I took care of my mom/dad for about 5 yrs before my mom died, about 11 yrs after that taking care of dad before he died.....he was very difficult to take care of, esp. verbally. I've never found a site where the poster has my disease, lots of sites but people don't post.

      My home is my safe place meaning I don't leave it often. Went to my granddaughter's 13th birthday party, sat in wrong place, as one family came through door with their 4 kids; I went into panic attack, luckily my daughter saw me, came over, helped calm me; once they passed, that helped a bit. Panic attacks are coming much more often now.

      I rarely talk on phone as I can't remember what was said, email alot.

      Having small stroke as writing now, face going numb, arm take a minute to think here, get very tired ok I'm back; still tired but that'll go away slowly.

      I hope I can come back here, let out my feelings be they good/bad, try to catch up with what's been going on in all your lives. Trouble is I forget so easily now, but I'll try. If you think I should post someplace else please tell me, k? Thanks for listening. I recall you all as being a bunch of wonderful women, sure that hasn't changed........my love to all of you, gentle hugs, hope you are all well......kat :)
      TMJ/shoulder/parotid tumor surgery, Scoliosis, Lumbar fusion for Spondylolithesis; now in entire spine. Herniated cervical disc, no surgery, high risk/Vascular Dementia (VaD), Breast Cancer survivor 12 yrs, Fibromyalgia, Osteoarthritis. Rapid transit small bowel/no weight gain, IBS, 'cusp'/Crohns; Diviculosis; myoclonic dystonia. VaD, my 8th yr, causes tia's, seizures, strokes, Parkinson's, Lewy Body Dementia

      Comment


        Kat , bless your heart, you have been a big help to me, we have finished with all the testing for my husband and we go Monday to get results. Like you we are thinking vascular Dementia , due to his diabetes . He can remember parts of some stuff and then just has a black hole when he tries to think of what he was going to say or do. It is heart breaking for him and as you say, he knows this! I know it will get worse as time goes on.
        Kat you are an inspiration to so many, I always try to look at the new post everyday, so you post in any of the forums, ....emotional support,.. Alz. ,..Caregiving and we will find you. No worries at all about that. I can tell from the many replies you have received in the forums that you are very much loved and you just remember that okay !big hugs to you dear sweet lady, GING :)

        Comment


          I haven’t posted for a few weeks so here is an update. The meds were adjusted for Mr. J. The psycho comes in later and readjusts and increased the dosage on two of the meds. A few days later Mr. J falls. So the nurse practioner that checks on Mr. J calls the psycho back and rolls back the dosage to what it was previously.

          In the meantime Mr. J. is in a wheel chair. Back last week they had him using the walker. Last Sat. he seemed ok. He does have his good and bad days though lately. Well anyway I saw him earlier in the week and back in the wheelchair he was again. I talked to one of the nurses that day and she did not know why cause she had been off the previous day and the day before he was ok.

          Yesterday the nurse practioner called me to let me know that they were going to take some ultra or Doppler tests on his legs as he had a history of DVT after the brain surgery and strokes and seizures. One of his legs was swollen and she thought might be due to the alarm band that was fastened to his ankle. So she had them cut it out.

          This morning she called and told me that the tests showed blood clots in both legs and that they would put him on a blood thinner. This can be a touch and go with this cause just this last Sept. he had a bleed from an ulcer. Then with his OCD’s have to be careful of a fall . So he will have to be monitored closely. He is being put on bed rest and the bed has an alarm if he tries to get up by himself.

          I was also told that there might come a time when they won’t treat him and just try and make him as comfortable as possible.

          Yesterday she told me he was more alert but today is more sleepy and groggy She thought he might have had a bad night’s sleep. But that is how he has been for a while.

          I will go tomorrow and see him as today looks like it would not be a good day for a visit.

          Yes Kat I kind of know what vascular dementia is. It is very comparable to what Mr. J has. The difference being the direct cause was from the complications of surgery he had. I don't know what else to tell you. I live in Wis. also and who knows might be from around the same area

          Bless all of you here.

          Take Care

          mrs j

          Comment


            hey everyone !

            well, i have two weeks worth of news to tell.

            the day after i saw my mom two weeks ago, a nurse called from the home and said the psychiatrist had seen my mom and said that she was exhibiting some extra anxiety and he was going to put her on risperdal. well, i immediately thought of you, mrsjerome and the situation you were in a few weeks ago. i couldn't get ahold of the nursing home until the following monday, but when i did, i told the nurse that i see and talk to every week that under no circumstances did i want my mother on an antipsychotic. she said that it was just to make her a little calmer. i told her i knew what it was because i'm a certified pharmacy technician for 17 years already and i've read plenty about that drug. i told her there is no indication that it even works in patients with alzheimer's disease and that the side effects can be worse than the behavior the patient is exhibiting. i also said when i signed my mom into the nursing home that i put IN LARGE LETTERS (like that) on her medical form that under no circumstances did i want my mother to be put on antipsychotics unless she was a danger to herself, other residents or the staff.

            well, the nurse said that she would tell the doctor that and if he had any questions, he could talk to me and i said that was fine. i have a patient care conference coming up this thursday with the nursing staff and i'm going to bring that paper that i signed in the beginning. i have also asked for my mom to be evaluated for hospice, which might mean they have to find out if the polyp in her colon is cancerous. i have told my siblings about these things i have put into motion.

            i don't know why they want to drug my mother. she only gets angry when something is annoying her and removing her from the situation is what they should do. she cannot walk by herself and can't get out of bed without help...so what is she going to do? play dodge wheelchairs and ram into people? we were sitting in the dining room and visiting last thursday. this other woman started banging her hand on something. my mother started talking about her and i could see she was getting irritated. it was irritating me, but i don't have alzheimer's, so i can ignore it. my mother finally shouted at the woman, "do you mind? we're talking here." a cohesive thought from her . if that's what the psychiatrist wanted to calm down, he is an idiot. they have some service come and evaluate a patient whenever the nursing staff asks. i told the nurse they can put her on more of her anti-anxiety med if they want. and you know what else? the nurse NEVER told me about anything that my mother has done that has merited psychiatric intervention. i'm there every freaking week and i say hello to her and tell her probs i think my mom is having and she hasn't mentioned ONCE that my mom is overly-anxious or getting harder to handle. that really bugs me.

            anyway, i'm really going to give it to the staff at the care conference. ask what % of their patients are put on anti-psychotics and why? i have seen people hanging around the nurse's station who are obviously severely mentally challenged. they scream the same thing over and over and they bang their heads on their chairs or do other things. i don't see my mom being in that category. but, i'm going ot ask the staff if they would want one of THEIR parents put on an antipsychotic. they cannot just warehouse these people and drug them until they die. more and more people are going to get this disease and they are going to have to find ways to let them live as well as possible and not by the power of karaoke.

            if i were independently wealthy, i would crusade for better treatment of people with alzheimer's that are in nursing homes! ugh! i am just so p'd off!

            but thank you all for being here, anyway .

            my prayers go out for your husband's...jan and mrsjerome and ging . thank you for your support pati and julia. and puddykat, you are an amazing and inspirational person! you don't know how valuable the information you give us is! i want to tell you that i pray for you so much because being aware of your own illness is heartbreaking...at least alzheimer's dementia doesn't give that heartbreak.

            thank you all for sharing and caring, i love you all ,
            jeannie
            Last edited by tic chick; 02-04-2012, 07:25 PM.
            WE ARE BT!
            "The world is a better place when you're barefoot." Mark
            "Don't go there unless you know the way back." TC
            "...there will be an answer. Let it be." Paul McCartney

            Comment


              hello group. *I* see some news since I was here last. Jan, I don't know how you do it all. It's time's like this when we call on family and friends. I hope you have plenty around you. It's too bad we are all so far apart. ((((((Jan)))))).

              Ging, I've really missed you. It sounds like you have things well in hand. I hope so for your sake. It's a hard time for you right now, but then again I don't know any good times to be had with Demantia/Alzheimers. i know there are some differances, but when it all gets to a certain point~~~~~~~~~~it seems to all melt together. ((((Ging)))) Don't be a stranger here, we all care about you and your family.

              Kat, my dear Kat! I miss you, but when I see you have posted someplace I will go read to make sure you are alright. I used to post in the Spine Forum some time ago, but its been hard to get around to all the forums these days. I love going to "the pity-party room" . lol I've gotten more than one boost there when I was down. It just keeps right on a going, like the energizer bunny!! lol I know things have gotten worse for you but you still have that great disposition, spreading smiles every where you go.

              You have posted some threads that are very helpful to many. I didn't know a thing about your disease until you explainned it all and I hope anybody that is new will look up the group of explanations to learn more of what is going wrong either with them or their LO's. You are one in a million and million and I love you dearly! ((((Kat))))

              Mrs.J., you are truely having a hard time and I wish I could help. It seems we never know exactly where we are with the disease. One day will be a good day, then you will have a string of bad ones, You already know these things and I feel so for you. Please let us know how things going with the med. change and all. ((((mrs.J.))))

              My dear Jeannie, it feels like we are yo-yo's somtimes. Up and down. I think sometimes the NH staff tell the Drs. what THEY want the patient to have so their work won't be so hard. I think that is cruel and one day they may reap what they sow! I'm glad you are out-spoken. Siblings will just have to live with their own hurtful behavior. You can sleep at night, knowing you have done the best you could do. No regrets.

              All that hard work you have done in your yard have served more purpose than one. I enjoy reading the different things you have planted. You and Pati both are great gradners. I hope your Mom will have a good week. It is always a blessing for all of us to see those that have a good week.

              I love you all and would come and give you all a break if I could. Take care, Julia
              Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
              'cause you are the wind beneath my wings

              for my brother Ben

              Comment


                Juila , thank you for you hugs and all the support you offer to all of us? I am traveling in uncharted waters or me, the neurologist office called and said the last test wasn't in so it will be another before we can get an idea of what is going on.my husband has been almost like his old self for about two days, that gives me hope, then something like changing the password for the bank and not telling me and he can't remember brings me back to reality ! He does seem aware of most everything, he just can't remember day to day things and no details about anything at all that is recent, I am really thinking he may have the VDementia that Kat was telling me about, so much of it fits. Sometimes I want to cry for him and for me because we grew apart with his mood swings and anger, and now I understand it is because of a sickness.well I will just do the best I can, it is hard and you all know it, my journey has just begun, I have to keep my aneurysm checked as well and worry about if I should stroke out who would take care of him when he gets to that point, I don't even know how fast something like this progresses ? Oh well, one day at a time is all I can do so that is what it is ! Thanks for listening, (((hugs))) GING :)

                Comment


                  hopefully the bold will work this time cause otherwise I cannot read my own writing!

                  Kat,thank you for making the effort to keep posting here. I've learned alot from your experience with Vascular Dementia. you are a remarkable woman in my opinion.

                  Mrs. J. hopefully Mr. J will get on the correct drug amount soon. it can be tricky. my housemate has been to ER twice now for DVT & it's truly scary!

                  Jeannie,give 'em a big piece of your mind on Thursday! that is dreadful to think they give out anti-psycotic's. I've seen first hand what can happen on those drugs & it's not pretty. the way you discribe that NH makes me shiver.

                  Ging,Jan,Karen & anyone else......(gentle hugs) to all.

                  as for my life? well housemate is not as angry these days. unfortunately one of his Kiwanis buddies just died from Alz. & he attended the funeral. another buddy is showing signs of dementia & had to be moved to assisted living. this has got him thinking about his own future. we are both still mourning his daughter's death. I was counting on her to help with her dad. I'm trying to get him to face some facts but not having much luck. told him to imagine his DIL's going through all his papers! he mentions he needs to get a lawyer & update his will,get power of attorney,etc. taken care of but I don't nag about it & doubt he'll ever get around to making any changes. he truly believes he's immortal.

                  nothing I can do about my mom either. I've mentioned somewhere that my last conversation was weird. she was laughing about hiding my dad's pain pills (for shingles). we were discussing cleaning gutters & she said water goes up. these remarks are bothersome to me of course but I don't try to correct her or argue about anything. dad has his brain faculties so if he allows her to destroy his meds that's his own fault. she doesn't leave the house very often. I let her call me now,if I call she seems to get confused who she's talking to.I recognize she just says what pops into her head. for example telling me her father had excellent health-he was severely deformed from RA & suffered horridly. she also claims she feels better @ 82 than she did @ 62. fantasy world! she's fixated on numbers/dates.

                  I count my blessings everyday.and trust when either my own situation or my folk's gets worse someone will have the power to intervene & help. when I read about the NH's I'm very grateful I don't have to face that situation just yet. your stories break my heart & I pray for all of you to have the strength you need to keep going.

                  ((((gentle hugs to all)))) Pati
                  Last edited by Buttons2; 02-06-2012, 10:27 AM. Reason: my spelling is awful!

                  Comment


                    I went to the NH yesterday with one of our sons to visit and check on mr j. It was not a good day for visiting. He was sleepy and groggy and he was just spaced out at times. We talked to the staff and told them to have the nurse practioner call me today which she did this morning.

                    She told me that she wants him to be more sedated this week cause they don’t want him up because of the fear of falls. They are giving him a blood thinner injection in the belly along with the Coumadin. They will do this for a couple more days. They increased the Coumadin today and will do another test on Wed. From what I understood they will discontinue the Lovenox then.

                    We talked again about the meds that led to his fall. From what I understand she will try to wean him off the anti-psychotic when this leg situation becomes more stable.

                    In the meantime we will just have to wait and see how these blood thinners will work. She said that he will be monitored carefully because of the ulcer bleed. The GI dr. wanted to recheck him again to see if the H Pylori is gone but he would have to be off the protonix for a week to have to be able to get a reliable read on the test they use. But now with the clotting issue this will be put on hold as they don’t want to take him off the protonix until this clotting issue is taken care of.

                    Jeanne this is the excuse they use to put patients on anti-psychotics . “They can be harmful to the staff and or the other residents”. This is their reasoning. To me it sounds like they prefer a patient to be more vegetative. All we would like is if perhaps their can’t be a better medium

                    As you have probably seen some residents get more agitated than others .It’s when these residents start striking out at others is where the problem comes in. There are liability issues that are involved here as well. These residents can no longer be physically restrained. NH’s really don’t have enough staff to deal with the problem.

                    So what happens is the psychiatrists are called in. I have not seen one psychiatrist yet that doesn’t just get out the prescription pad. They prescribe these meds even though not approved for in the elderly.

                    They can prescribe them off-label and that is what is presently being done not only in the elderly but also in the developmentally disabled and that applies to children as well.

                    I could go on and on why this is not right but until some better solution or deterrent to this practice comes along am afraid that if your loved one is red flagged with these behaviors there is not much choice. In some cases they are just put in a psychiatric ward and would be drugged anyway.

                    I wish you the best with your caretaker meeting. It is to your benefit that you have some expertise and the credentials to back up your viewpoint on this.

                    Don’t know really what else to say on this matter. It is just so darn frustrating dealing with this.

                    Take Care

                    mrs j

                    Comment


                      mrs j ,

                      i ceratinly agree with you that psychiatrists are called in and they get out their prescription pad.

                      however, I have the power-of-attorney.

                      now, i'm not saying this to you to sound like a know-it-all, i'm just mighty displeased with the whole system...and i wish i could fight for or educate everyone, but i can't. i can only make decisions for my mom.

                      before they gave my mother any antipsychotic, i would want documentation of people she has hurt. i don't care about yelling at people...that's not the same. i would want proof that my mom has the physical strength and mobility necessary to go up to a person, bend over and be able to reach them far enough to hit them. and if they give me bs about "possibilities", then i dismiss their services.

                      yes, i can do that.

                      i can say i do not want the psychiatric service called to see my mom. i do not want her put on any antipsychotics. i want hospice involved in her care. i can do this all because i have that power of attorney paper. i can discharge my mom from any psychiatric ward or hospital that i want. it is called "discharging against medical advice". and i can sit in their emergency room or their psychiatric ward with my mom and not let them treat her until they find a place to put her and if i don't like that place, i can say i don't want her going there.

                      right now i have the time and inclination to do this because i'm unemployed. all i need is patience, stubborness, my power of attorney papers and something to eat every 6 hours or so. i can out-manuever and out-talk anyone who tries to tell me any kind of bs that i know is not true.

                      mrsj, if people treat me nice and are reasonable in their care of my mother, i will go along. but, i will not be pushed over. people have to know what rights patients have in a care setting like this. a physician can prescribe anything he wants off label. i can say i don't want my mother taking it and i have that right. my mother has the right not to be forced to take a drug that might make her die prematurely just because a nh "THINKS" she is a danger to others. they have to have documentation she "IS" a danger to others.

                      the days are over when you can just let doctors do what they want and trust that they will do the best for the patient. that is why i am educated about antipsychotics and about my rights as a power of attorney (written right on that POA document it lists everything i can do for my mother) and my mother's rights as a patient. there is a statement about patient care in the lobby or somewhere visible in every nh or hospital. it basically says if you think the person has not received good care, you call a number. i will not be bullied or given bs or be scared into doing something i don't want done to my mother. that is always the way i have been and will continue to be.

                      i can be a lady or i can be a b****. depends how they want to treat me.

                      i will be my mother's pit bull advocate for as long as she is alive and for her to have as good a life as is possible for the time she has left.

                      dealing with this disease in a loved one is hard enough and i will not let them make it harder by letting them give me a hard time, because i'll give it right back to them.

                      and anyone out there reading this that has power of attorney for a loved one with any kind of disability, whether that disabled person is their child or an adult, has the SAME RIGHTS! all they have to do is have the courage to use them!

                      mrsj , i know it is hard. we all make decisions on how far we will go based on a number of factors. i have chosen this course because i am healthy and i have the time and i have the determination. take away any of those factors and i probably would have to modify my actions, but as long as this set of circumstances stays the same, this is the course i steer for my mom.

                      and i have one more ace up my sleeve. my sister-in-law is an attorney and if she can't help, she would know someone who can. her husband is my brother and my mom's son.

                      thank you for sharing and caring and giving me strength ,
                      jeannie
                      Last edited by tic chick; 02-08-2012, 10:37 AM.
                      WE ARE BT!
                      "The world is a better place when you're barefoot." Mark
                      "Don't go there unless you know the way back." TC
                      "...there will be an answer. Let it be." Paul McCartney

                      Comment


                        hugs to all you dear friends that walk this road of throns everyday. I wish I could make it all better, but it doesn't work that way. Jeannie, your words are powerful and I dare say it has helped not only the people here in the forum, but those that click on the button to view this forum.

                        Mrs. J., I so feel for you. It all is so draining on the caregiver whether our LO is in NH or at home. I can not imagine caring for the Alzheimer/Dementia patient at home when they get to the point Jeannie's Mom and Mr. J is. Ken and I were just talking about this the other night. For a time, yes, but we kept Mary here much longer than we should have. After Ken retired he begun to understand why my own health was going down the drain.

                        NH's are always "understaffed". Well, if they would pay their employee's what they deserved they may be able to keep good help. I saw the money going to all the wrong things, but it wasn't for the patients. I can understand Pati's concerns about the whole deal. If the patients doesn't have someone to speak for them they do not take care of those patients. The staff can be "bought" so to speak. One of K's sisters would do this. K would not do this, but he was there everytime they turned around. Well, it all took it's toll on him and he suffers from many things he never dreamed he would have to deal with.

                        Please know that I care and if I can do anything to help please call on me. This Disease from hell does not care who it attacks!! I pray they will find something to help those that do suffer from it.

                        My thoughts and prayers are with you all and I love everyone of you in a very special way.

                        my love, Julia
                        Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
                        'cause you are the wind beneath my wings

                        for my brother Ben

                        Comment


                          hey everyone !

                          well, i have to face the fact that my mom is having episodes of uncontrollably agitated behavior with some violence.

                          but, all is not so bad.

                          i went to the caregiver's conference last thursday. the manager of the unit was there and she understood what i wanted to say about antipsychotics. then she told me my mom was receiving the LOWEST dose of her xanax and ONLY when she got agitated!

                          so. the psychiatrist from the service could have done 3 things before he pulled out his effing prescription pad and wrote a script for risperdal and i told this to the manager:

                          1. he could have kept her on that low dose med and given it to her on a regular basis to keep her calmer throughout the day. he could also have upped that dose and did the same thing, given it to her several times a day.
                          2. he could put her on a longer acting anti-anxiety med, because xanax works fast and doesn't last long. he could write a script for a benzodiazepine that would build up in her system and stay there and then she would only have to take maybe 2 doses during the day to keep a level dose in her body and thus keep her calmer all the time.
                          3. there is another drug called "depakote" which has been used on alzheimer's patients who are exhibiting violent behavior. i've read about it and it does have similar effects to the behavior they're trying to control, but it's worth a try before any antipsychotic.

                          so these psych docs are just lazy and don't want to think. i am going to call one of them and ask them what was in his mind when he thought prescribing an antipsychotic was his first line of treatment when he hadn't tried any of the above ones? i'm not a doctor and i even thought of those. the unit manager said she would certainly talk to the psychiatric doc. i said if none of these works after a month's trial, they'd have to try other anti-anxiety meds.

                          they also were quite nice about my mom's missing clothes that i bought her in december and haven't seen since. the unit manager said they should have them found or declared them missing and i would get reimbursed if they haven't been found within a week. at the meeting, one of the social workers asked if i had seen my mom that day, i said i had. she asked me if that top my mom was wearing was hers. i said no right away, cause i know my mom's clothes, i bought them for her. i told them i always see strange clothes in her closets and not the clothes i bought her. the woman said another woman had told her that my mom was wearing her top that day and i said, well, she's really observant beause it wasn't my mom's.

                          i also found out that my mom has paired up with a man. they talk to each other and he watches over her. the social worker was happy about this because this man didn't have anyone he could pair up with to talk or anything. they like every resident to have a "buddy." so of course my mom found a man .

                          this is what my mom is doing that is considered agitated behavior:

                          swearing at people or just swearing out loud at nothing.
                          throwing her food on the floor.
                          throwing her utensils on the floor.
                          going up to a person and pushing their head and saying, "you're not really asleep" when the person was asleep.

                          now i find that last one hard to believe because my mom has very little strength in her right arm because of her shoulder pain and she doesn't have much muscle strength. she can barely move from bed to wheelchair without help. she certainly cannot walk. of course i know they can get bursts of strength, so i have not completely dismissed that she could have done that.

                          but, she could have these behaviors for a while, until she loses enough memory that things don't bother her or they could go away with the right meds.

                          it just makes me sad because i would hate to hear that she had done something to hurt a patient. now they called me the next day after the conference and told me about more bad behavior. i don't want to hear about this everytime she does something. get her on some kind of regular dosage of meds that will calm her down! tell me once a week when i come what's happening with my mom's behavior. if i get calls several times a week about my mom's behavior, i'm going to be upset. i can't do anything about it and neither can she. this is not her, it is the dementia. i will not apologize for my mom because this is not under her control. i certainly would feel compassion for a person she had hurt.

                          i didn't know what doses of meds she was getting and how often. i knew the names, but not anything else. she never had probs with this much agitation before, so it's good i found out now about the sloppiness of their actions in not increasing a med that she's on and right away putting her on an anti-psychotic. they also didn't get my permission to put her on that. they called me at 430PM on a friday and i was unable to get anyone at the nursing home until monday. when i signed the papers for my mom when she came into the nursing home, i had one piece of paper that i wrote across the front, in bold capital letters, "under no circumstances is my mother to be given any atypical or older antipsychotic medicines!" and i signed my name. i am going to bring this up with someone higher because i have a copy of that paper and i do not know why it was not written into her chart. i want them to be informed that i am informed and they will inform me about anything that goes on with my mother's care. this is written in my power-of-attorney.

                          so. i will closely watch my mom's medication payments come in and see what they are giving her. she has another urinary tract infection, the second in 2 months and that could have caused her agitated behavior. they didn't check for that until afterwards. it should be the first thing they check and i am wondering why she is getting so many, but i suspect it is because she is not being cleaned up within a certain period of time. they just have a schedule for changing diapers and that's what they follow, but if a person has fecal matter against that area of the body for awhile, it can travel up their urinary tract and cause the infection. once again, not enough help to even prevent that.

                          they are going to have to make some changes because they will get sick of seeing me so often if they don't.

                          thank you for listening and sharing and caring ,
                          jeannie
                          Last edited by tic chick; 02-13-2012, 12:38 PM.
                          WE ARE BT!
                          "The world is a better place when you're barefoot." Mark
                          "Don't go there unless you know the way back." TC
                          "...there will be an answer. Let it be." Paul McCartney

                          Comment


                            Jeannie,.......................................... ...................................

                            You & your mom are in my constant thoughts & prayers!!

                            Phyllis

                            Comment


                              Jeannie, did they have written reports as to what they said your Mom had done? In SC that is a rule, state wide, written incident report!

                              That is why we moved MIL, no report, shoddy way they ran the place etc. but the "no report" is what he told the "Elder Advacate" among other things. They gave the NH a surprise visit, found many more things that was wrong. They slapped a huge fine on the NH and they encouraged K to file a lawsuit.

                              Not long after that I noriced the place was closed down. So, if they say your Mom did so & so, ask for the written report, time and when di it happen. Check with your state and see how the Elder Care office works. Here they do not work for the NH!!
                              I think they are called "Ombudsman" here. Not sure of the spelling. Either way I would insist on that written report if they are claiming your Mom is attacking the other residents. To me that sounds very much like a cover up for something else!!
                              I don't know everything, but I know how they work here in SC. I don't believe for a min. that your Mom is going around and attacking others.

                              love you all, julia
                              Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
                              'cause you are the wind beneath my wings

                              for my brother Ben

                              Comment


                                Jeannie,this med. information is very interesting. I know you're doing everything possible to assure she gets the best care possible. that shrink needs to go-he's just lazy & definitely not paying attention. and since they are NOT following your directives can you file a complaint with a state board or something? I've no idea of the laws in MI. perhaps your DIL can help?

                                I actually told my housemate about the med issue since he was perscribed anti-psychotic meds for many years. he did far better without them of course! I knew he'd recently seen a lawyer to have a new will made out & warned him not to make a decision he might regret on power of attorney. he won't heed my advice of course but I tried. I don't trust his son that lives nearby.

                                you're very smart Jeannie,I think you've figured out she may have strength to harm another patient but where's the proof? why don't they have cameras in the rooms?

                                it's good she has a buddy. maybe he brings a bright spot to her day? some women just don't relate well to other women & that includes their own daughter's of course.

                                (((((gentle hugs))))) and thanks once again for sharing,Pati

                                Comment

                                Working...
                                X