June chitchat

[agate]

That does seem very unfair that the roofers could mess up your place with the roofing debris and yet not be allowed to come in to clean up the mess. There's probably some clause in their insurance that specifies that they aren't to enter any premises. If you know a lawyer, maybe that person could investigate whatever contract was signed between the roofers and whoever hired them--to find out just who is obligated to do what. You may have some recourse you aren't aware of.

There's probably a homeowners' association that may have hired the roofers? Other people there might have similar problems with the roofing job and the way it was done. If you are in contact with anyone in that association, maybe you could find out?

I've lived in several condos and a coop, and that would be the way I would go but I think your situation isn't exactly a condo.

[Virginia]

My brother, Eric called yesterday and talked for awhile. Then today he came over and brought me a salad, picked up a prescription for me and checked the soaker hoses going to my plants and the timers hooked up to turn the water on.

I cancelled my July appointment with the neurologist office in July because I needed my brother to help me with my computer. It was to be an on line appointment and the last time I tried it the audio goofed up. It was nerve racking and I don't want to go through that again.

I am glad I cancelled the appointment. My brother seems as well as can be expected, but he has a lot of anxiety and he just has to do what he can at any given time. When it gets too bad he has to get up and leave. If he is at home he can just drive around in his car.

He looked at my skylight and said he didn't think I would have a problem, but if it leaked and ruined my carpet or furniture underneath it I can just call my homeowners insurance. I told him they would then up the price of my insurance. He says they have not gone up on his and he had a really big claim when his house burned about 3 years ago. He thinks I am worrying about something that might never happen. So, I guess I will wait to worry until I need to.

I am tired of this hot weather already and it is only June. The humidity is so high, it pretty much restricts me to my house. I had been trying to do some exercises but I didn't do them yesterday or today. I will do my best to get back on them tomorrow if I can.

Tim is your weather still hot over there or has it cooled off again? When I was in France and Germany for several years there would be some pretty warm days but they didn't last any length of time.

Agate hope you are doing well and your weather is cool enough that you can get out and walk some.

[Prot]

Virginia, it's not been overly hot here. I've been struggling pain wise. Recently,last 5-6 weeks or so, the right leg has been playing up more than the left. Yesterday it was both of them playing up. I don't have to do much for the pain to occur. I can take up to 2 codeine 4 x a day, but try not to. Like many with autism I'm prone to constipation and then experiencing the opposite. The codeine is known to cause constipation. My daughter has said to do a few minutes moving about, take a short break, and then do a bit more. She has told me to walk at a slower pace. As I tend to rush,and then get out of sorts.

.I'm trying to run down the food in my freezer so there's room for soft foods after my teeth are removed.We have an election here soon. I have sent off my postal vote already

[Virginia]

Tim, I am so sorry you have pain and so often. I just can't understand why they can't do something more. I guess it is because they don't know what is causing the pain.

I agree with your daughter about going at a slow pace. She has probably seen you get in s hurry. My walking is at a very slow pace and if I try to go fast I can easily fall.

Tim if your teeth are infected that can cause major problems. I hope after the dental work is completed things might get better for you.

[agate]

I agree about infected teeth. They can cause all kinds of other problems that miraculously go away after the teeth problem is fixed.

Really severe pain can get in the way of just about everything you need or want to do. When you can't eat or sleep because of the pain, then you go downhill all too fast. I hope your pain isn't that bad, Tim.

Virginia, I don't know about insurance but maybe they wouldn't raise the rates on someone who hadn't made many claims over time? I mean, I don't think they automatically raise the premium rate just because a person has filed a claim. That wouldn't be fair at all. Unfortunately, insurance companies aren't known for being fair. So I hope your brother is right and you don't need to worry about a possibly leaky skylight.

I've been hobbling around more than usual during the last couple of days because my left foot has a pain problem, on the outside of the foot. I've had this before and it's a matter of letting time past and resting it when possible. I have no idea why this happens but am glad it's not the right foot, the one that had the fracture a year ago.

Every time I see the podiatrist he's apt to say how really lucky I've been with that fracture because he said it was a very "bad" break. This sort of suggests that I should expect big trouble from it down the pike but so far I've been free of problems with it except for occasional twinges of pain.

[Prot]

Virginia agate

There's currently no infection, and the remaining teeth are quite sturdy according to the dentist, but full of fillings. However they need to be sorted so that a yearly infusion for osteoporosis can be done.

The leg pain I put down to the damage caused by the time taken to find out I'd fractured my femur.Being upright for more than about 15-20 minutes, sometimes less, and the pain kicks in. On sitting down afterwards usually there's some pain for a while,but it gradually eases. A major stumbling block re getting on top of it treatment wise is that different parts of my legs can hurt on different days. Today,so far, it's been radiating from the sole of my right foot. It's not easy getting the balance right between being too sedentary (muscle wastage) and being upright for too long(pain).

The fact that I'm at least 30 kg overweight due to the psych med, that doesn't help either. Virginia I notice you're from NC .My late father and my stepmother lived/live in Charlotte . They moved there from Atlanta, where he'd been British consul general.

[agate]

Tim, have you had one of those osteoporosis drug infusions yet? How did it go?

About a year ago the evidence became too clear to me that I was at the kind of risk the bone density tests kept saying I was at, and I started taking Fosamax--a pill once a week. I wasn't offered any other option but that was probably mainly because my insurance wouldn't have covered it. I don't think I'd have wanted the infusion if it had been offered but I'm not sure why because it sounds easier--an infusion once a year as opposed to the pills that have to be taken weekly and only in a certain way.

I just hesitate to sign up for anything that involves travel anywhere. Do you have to travel far for the infusion? How long does it last?

[Prot]

My teeth have to be sorted and then a 3 month wait before the infusion can be given. The infusion takes about 15 minutes. It will be done at a hospital 17 miles from where I live.

[Prot]

agate Virginia Does the ms affect you cognitively? Brain fog for example.

[agate]

Tim, these may be some examples--I'm betting that they are MS moments:

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Brain fog is often mentioned by people with MS. When I've been overdoing, I'm easily confused, forgetful, and tend to do very very stupid things. Unbelievably stupid things.

[Virginia]

Tim, yes the MS does have a detrimental effect on me cognitively. Like Agate it is much more so when I get hot or quite tired. Then I can get very confused and forgetful. I feel quite out of it when that occurs.

Agate, I can't believe I even mentioned that darn skylight to my brother with what he is going through at this time. It makes me ashamed of myself for worrying. He is right that the worry might be for nothing anyway.

Tim I like Charlotte, but like most our cities it is getting too crowded. I also lived in Atlanta many years ago. I loved it back then but would not want to be there now. Your Dad probably felt the same after he retired and moved away.

[agate]

I don't think you should feel badly about telling your brother about the skylight problem. You have MS, and anything that disruptive could be major for you just to deal with. I think he probably realizes that.

Tim, thank you for your reply about the infusion of the osteoporosis drug. I had no idea it would take only 15 minutes! When I hear about any infusion, I picture at least an hour of sitting or lying in some hospital-like setting with a needle in your arm.

[Prot]

Thanks agate and Virginia. My cognitive abilities dip when stressed. I don't do well when under pressure. Like quite a lot of people with autism there's an adaptive functioning < IQ gap.

Individuals with autism spectrum disorder (ASD) exhibit significant impairments in adaptive functioning that impact on their ability to meet the demands of everyday life. A recurrent finding is that there is a pronounced discrepancy between level of cognitive ability and adaptive functioning, and this is particularly prominent among higher‐ability individuals.

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Not many people, including (mental) health professionals,sadly, can understand how intelligent I can be- yet struggle with every day practical tasks that most people take in their stride. Prioritising the steps to be taken in a multistep task is far from easy for me.

[agate]

I dread and hate multistep tasks these days, and so any problem involving a computer or tablet or smartphone is a major challenge for me just because those problems often involve a whole series of steps that usually have to be done right or else you start over.

[Prot]

I'm OK with computer/tablet problems so long as the solutions for fixing them aren't too technical. I can't use a smartphone as it's very hit and miss when it comes to getting the swiping right. My daughter says I'm too heavy handed(dyspraxia?!). I have a basic senior phone to receive the codes that are sometimes/often required by websites.

[Prot]

Received letter yesterday re my recent appointment at the oral surgery dept. I'm described as having a 'complex medical history'. On account of the autism,schizophrenia, atrial fibrillation,Barrett's oesophagus, lymphoedema, and premature osteoporosis. Unmentioned was the rheumatoid arthritis,scoliosis, mobility issues, low vit d, and chronic constipation.

[agate]

I'm OK with computer/tablet problems so long as the solutions for fixing them aren't too technical. I can't use a smartphone as it's very hit and miss when it comes to getting the swiping right. My daughter says I'm too heavy handed(dyspraxia?!). I have a basic senior phone to receive the codes that are sometimes/often required by websites.

Yes, the swiping! I gave up on the swiping almost at once. I just wasn't able to do it in a timely way or maybe to do it at all. My smartphone is never separated from the stylus I use to navigate on it. They're cheap and work pretty well.

As for those pesky codes, they get sent to me by e-mail or a phone call. At least one other option is usually available so you can bypass the text messaging. Someone whose phone is never turned on would need to turn it on, wait for it to go through its startup routine, and find the text message. Too much time and effort for someone as lazy as I am.