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Keep on Moving Club: Sept. 2017

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    #16
    Surfing

    DH took me surfing this morning. I was fearful since the waves were forecasted to be waist to stomach high, which used to be a gas, but I worried if my body could handle the paddle out and wipeouts. But I thought it was good to see.

    We got there and it was very crowded as the forecast was so promising. Maybe 50 dudes in the water.it was knee to thigh high with an occasional waist high. It was thick with seaweed. When it wraps around your leash, it becomes an anchor, ..my friends groomed it because they know I can't do a pretzel to grab it.

    There was plenty excitement in the lineup and chatter about the swell filtering in mid week. It will be bombing next weekend. All the characters were there. It's like coming home.

    I lasted almost an hour including walking to,the beach and a 5 minute time out mid sesh to settle down the leg chatter.

    I took in a bunch of waves, and two were my keeper waves-- am still on that last wave. The energy of the wave transfers from the board To my legs, making it easier to flex which is impossible on land. Such freedom!

    This infusion yesterday may be helping. I recovered very quickly from the surfing. And have had almost no neuropathy the rest of the day.

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      #17
      BBS, another great surfing day. I love to hear you talk about this. I can only dream, but then I couldn't do it pre MS, however just listening to you has made me wish I had tried.

      I am so glad you get these thrills and are able to get the legs and body to work as well as they do. It just sounds so exciting.
      Virginia

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        #18
        Resurface

        ((((((Hugs to All)))))) ~

        Speaking of surfing ~

        I watched a short documentary on Netflix, RESURFACE, about wounded veterans, who have learned to surf. For all of them, this is the therapy they needed to prevent them from suicide, depression and despair. A Vet with no legs and only one arm. A vet who is blind and deaf. A Vet with TBI and seizures. They are not deterred.

        Only registered and activated users can see links., Click Here To Register...

        Watch the trailer on the site. You will be inspired.

        Love & Light,

        Rose
        Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

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          #19
          I had no caregiver on Friday, one thing I don't understand is why she didn't ring my doorbell, I would have woken up to that. I just went to my mom's house in the afternoon and she gave me a haircut, then did a little grocery shopping and brought $100 worth of food home on my scooter. $100 worth of food isn't nearly as impressive as it was 20 years ago.

          Speaking of short people, the toilets in handicap stalls are usually tall for me. I'm a whopping 5' tall, with a 27" inseam and my feet dangle in most chairs, unless I point my toes down.
          s
          Jendie
          I've been a member of this forum during its different incarnations since I was dx in 9/98

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            #20
            Jendie, pointing your toes down all the time can be tiring. Sometimes I take the leg/footrests off my wheelchair, if I'm going to a place where the access is poor, and that's when my legs are dangling. It is so tiring that I end up resting my feet on the front wheels.

            I'm 4'11" nowadays, down from 5'2" back in the days when I was trying out to be a model.

            That's just a joke, of course. There's no way I'd have tried out to be a model.
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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              #21
              I heard Agate is a thong model, that's something I've always dreamed about!
              "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

              Albert Einstein

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                #22
                You too can be a thong model! They'd hire you in a heartbeat, Howie.
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                  #23
                  Howie, you thong figure and long blond locks would make you a great one!
                  Virginia

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                    #24
                    Do you all think I could really do it? Well let me slip into a new thong I just got last week. It's still in the washer. It's important to wash anything like that before you wear it, and especially after.
                    "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                    Albert Einstein

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                      #25
                      Thank you Rose. The wounded warriors do this every year at my beach. It's powerful. I also hear medical marijuana can help PTSD.

                      I am not sure why surfing is so therapeutic. But it is.

                      I swam a quarter mile today.
                      Last edited by Sunshine; 09-04-2017, 11:53 AM.

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                        #26
                        BBS is still our hero. She gets out there almost every day.

                        I think Agate does exercise almost every day also.

                        Now that Virginia - she's just not much good.
                        Virginia

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                          #27
                          Originally posted by Virginia View Post

                          Now that Virginia - she's just not much good.
                          Virginia, I've biked 3 miles this year.

                          That should make you feel very good about what you've done! Just ignore those ultra consistent do-gooders here like agate and BBS...focus on ME!

                          That ought to make you feel MUCH better! It's all in perspective, Virginia - I'm here to make YOU feel good!
                          Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

                          Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

                          Comment


                            #28
                            Thanks Suze-Q, that little talk from you really did help. The only thing is 3 miles on a bike, even in 8 months, seems like a lot to me. You are doing great.
                            Virginia

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                              #29
                              I've biked 0 (zero) miles this year, SuzE-Q!
                              !
                              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                              Comment


                                #30
                                Originally posted by agate View Post
                                I've biked 0 (zero) miles this year, SuzE-Q!
                                Yes, but I haven't done needed exercises EACH MORNING like you!

                                Your efforts will take you much further than my 2 days' worth!

                                Virginia, what you've done this year is really good too. Every little bit helps.

                                We keep reminding Jeanie that little steps in the right direction are helpful. We have to take that to heart too. Even WE are doing better than couch potatoes!
                                Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

                                Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

                                Comment

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