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    #61
    So happy you have Lacy home and you’re graduating to three hours less help a day.

    ANN
    There comes a time when silence is betrayal.- MLK

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      #62
      That is great Jeanie— more progress :)

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        #63
        Sounds wonderful Jeanie. So glad for you that you feel you are able to do this. I am also glad that you now have the good company of Lacy.
        Virginia

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          #64
          Jeanie,
          Sounds like you are making progress which means Medicare should still be paying for your care as your rehab is progressing.

          Glad to see Mark back with us and HootsWithOwls joining us again after all these years. Best of luck with the new evaluations.

          I am in sort of a slow funk that is not allowing me the quick (I know!) turn around of work. I have to have my slides to the NMSS by the 11th (I thought it was the 7th) for a program I am doing for them on the 15th of this month. They gave me a slide deck to work from and it is so dry and technical that I KNOW folks will be falling asleep or turning off. So..my goal is, where ever possible to brighten it up. However, they sent me the slides in PDF format and not Power Point so I can't copy and paste and have to create three entirely new presentations (research which I present, wellness which I present and a wrap up which the society presents with copious notes as to what goes where). I have known this was coming since January and have been bad and a procrastinator. I just don't buy into canned programs. We are better than that. We owe those who are living with this far more than that. They tell me I can change things to an extent but to be careful crossing the line (What does that mean?) Hopefully tomorrow will have more mental energy and clarity to tackle this.

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            #65
            Sounds like you are doing the best you can Cherie. A wise person once said to me, “you eat an elephant one bite at a time”.
            And a B+ presentation is just fine, if you don’t have energy for your usual A+... the audience knows you have MS and that you don’t blow things off. Mom says....

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              #66
              Slides are done and sent off for review and loading! Not going to try and tackle more today as I have to go out for the evening in three hours so am going to just wash hair and rest till then.

              Also got my flights and hotels booked for three back to back commitments in three different States in September.

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                #67
                And the first installment article on what came out of the Consortium in Seattle has been sent to MS Focus magazine. Phew. Tomorrow we have a reception and dinner to go to after church then off to the condo till Wednesday. I can now relax and enjoy.

                Quiet here....

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                  #68
                  It's that time of year for me--the time when the housing recertification process begins, and it continues for 4 months but at least I have some time to get my ducks in a row. Just now I have only a couple of weeks--for this particular set of ducks--but I'm getting there. Papers have to be collected and checked, calls have to be made, fax numbers found, and forms filled out. At the final signing, which takes about an hour, I might sign 25 documents in all. So lately I've been needing to focus on those ducks.

                  SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                    #69
                    Agate, it sounds like you have to go through a lot. It is too bad that it is every year and not every 2nd or 3rd at least.

                    Cherie, glad you are caught up and off to condo for a good rest and relaxation.
                    Virginia

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                      #70
                      Agate,
                      I have no doubt you will be ready for this. Afterall, unless they have changed protocols, this is something you have done before and should ace it again.

                      77 and sunny here today. Nice and cool in the house with the windows closed but I just had to go run an errand and melted.

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                        #71
                        Cheryl and agate are ageing their paper juggling, both a pain in the neck to prepare, but necessary to meet their end goal. Good going !

                        I took an Ativan, planned today at 10am so as to get a break from the stiffening pain. It is so helpful.I am moving better, no need for R2D2, using rollator for safety only. Was able to cook a meal — a breeze this time. And enjoyed the day better. It will wear off around bedtime.

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                          #72
                          Another boring Saturday evening. I've seen everything on the channels I usually watch, but a movie called Night of the Demons is coming on at 10. I MAY have seen it before, but I'm going to watch it anyway.

                          A quiet day. I went to the store as soon as it opened, then drank 2 mugs of coffee, then took a 3 hour nap. I didn't sleep at all last night, just laid in bed, thinking, so a nap was needed.

                          I didn't talk to my brother. He's having car trouble, so I hope he can get that fixed over the weekend. It's been gloomy and raining all day, so it was a good day for sleeping, but little else.

                          Enjoy your weekend everyone!
                          "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                          Albert Einstein

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                            #73
                            Night of the Demons sounds like a good way to put some excitement into your weekend. I haven't seen it but it sounds, well, demonic. Probably some scary creatures popping up suddenly out of the darkness?

                            You have one of those living in, of course, but the more the merrier, maybe.

                            I've been watching a British movie over the last few days and will probably finish it tonight, along with another hat I'm making.
                            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                              #74
                              Howie, my post is almost a duplicate of yours, except that I would add my MS is acting up. But the rest, boring gloomy, rainy day, did not sleep last night and went to sleep in the chair this morning after breakfast. I was trying to figure out what is going on with the MS - as though I could. If I could do that I could probably solve a lot of problems. Just so much more parenthesis in foot and ankle and then started going up leg all the way to thigh.

                              Played on iPhone.
                              Virginia

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                                #75
                                Virginia, I too have had problems with my MS, but I don't normally talk about my MS. I've had vision problems off and on the last month. It gives me a sort of double vision. At times today, watching TV, I've just closed one eye which stops it. And it's not always present.

                                Hey, after 20 years, I'm used to symptoms coming and going, but this is hanging out a little longer that usual.
                                "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                                Albert Einstein

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