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    Someone had posted in one of the folders about headaches. I just want to mention that the variability and unpredictability of her headaches may well be related to her Ehlers Danlos condition. Note: it's in the CSF folder.
    Last edited by Mal L; 09-30-2011, 03:15 PM. Reason: Additional info.

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      I was just here then was at different sites then John just called & when talking to my DD she told him something. You see, she works at Victoria's Secret (they sell undies & stuff). Someone came in & till 'it' spoke she thought it was female. The transvestite asked her if they had any panties with words on the pack so that 'when on stage he could turn, lift his ____ and the audience could see'.
      Lorraine (lor)

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        46 degrees outside at noon here in detroit! windy overcast possibility of shower...a blustery day, as winnie the pooh said!

        but, then back up to 70 maybe tomorrow or monday! what a joke weather is sometimes.

        i'm going to see what i can do outside, even if it's only spreading dirt! (maybe)

        hope y'all are having a nice saturday! college football ( i know most of you like pro football) all day today!

        thank you for caring and sharing ,
        jeannie
        WE ARE BT!
        "The world is a better place when you're barefoot." Mark
        "Don't go there unless you know the way back." TC
        "...there will be an answer. Let it be." Paul McCartney

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          Going to the movie "Help" today. I'll let you know how it was for me.

          Jeannie, it was really windy here on Thursday. 40 mile a hour wind. Monday it's suppose to get back to the 80's again. I just hope we can drag this weather out for a while. I don't want winter yet. Feels like summer just started.

          Hope everyone has a nice weekend!

          Lor, I love Victoria secret, I suppose they get different people in there.
          Last edited by dawnmn; 10-01-2011, 08:22 AM.
          Take care,
          Dawn

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            I loved " The Help" saw it twice and when it comes on DVD or pay for view I will see it again, this time so I can yell at certain places and cheer! I hope you enjoyed it Dawn. I am not much for football so i may try to get my self up and walk g to get my strength back, man you can get weak after laying up for three weeks, hope you all are having a nice weekend :) GING

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              Hey, all. Still waiting for answers ot the Mystery of my pelvic pain---I got the GYN to admit I have an injury AND endometriosis, but we're not doing anything about the endo---and the injury is not "his" field.... So it's the usual argh and ack. I am getting scared that instead of injury I will end up with Permanent Problem b/c docs can't udnerstand more than one thing can happen to a body at once! (For those who missed out on the saga: I had ovarian cyst pain/endometriosis pain, got pain meds, and fell... and when I finally got PT, they made it worse b/c they were basically idiots.) Sorry to go on about it, but I'm getting to the point of not wanting to hope for anything anymore.


              Hope you are all having a good weekend!
              Dx: Epilepsy; depression; chronic GERD and peptic ulcer disease; pelvis and spine damage from accident.

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                Ouch, now my neck hurts. I had a runny but stuffy nose yesterday, so when I went to bed I sat/leaned up a bit to help me breath with my mouth semi-closed. Last time I slept with my mouth open all night it dried out my tongue & it accually hurt for awhile.///
                I just tried to talk with my FIL after he called my DD to ask her to bring some milk & mail a letter, she told me that. Friday we bought him a half gallon of milk so he wouldn't run out (this is sunday October 2). He has anouther half gallon with the date "Oct. 3" (I heard that's the last day they can sell it cuz in a few days it will be bad. Is that true?) Also he wanted us to mail something. I have told him nothing will be done with it till monday but he insists. My dh has said "you can't reason with him". I'm not sure why he wants to get a bill in one or two days after it comes to him (litterally 1 or 2 days). We wait for all or most bills to come then sit & write the checks (pay day). My son's at work, my DD is getting ready for work & I don't drive. I know you know about Lor & her FIL but I had to write.
                Last edited by lor; 10-02-2011, 07:51 AM.
                Lorraine (lor)

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                  GRRRRR-keep getting disconnected!

                  trying to catch up here and be able to reply!

                  Bella,I was wondering if you have news about your job? and if you got your car fixed? don't worry too much about your daughter,she will be fine. it's out of your hands for the most part (her future). she's still living @ home so that must mean she's where she wants to be? my kid's are in their 40's & I still worry about their decisions & I still let them know what I think,we will always be "mom" afterall.

                  Lor,your FIL reminds me of old uncle that has my housemate at his beck & call. I call him "the old baby". he can find more stupid things he needs done for him than you can imagine! we just have to show respect & realize we'll be there someday most likely & hopefully have someone in our lives to care about us. hope your neck is better! didn't realize your daughter works for Victoria's Secret. must be funny @ times!

                  Jeannie,your yard must be looking good! look forward to seeing some pic's. what are you doing about drainage where you put the black plastic to keep out neighbor's weeds? good luck with that!

                  welcome Ging! care to share some info about yourself? nice to have you join us here!

                  Leo, can you go to another doctor? a new one that might have some brain cells & an open mind? how about a woman's clinic? I realize you have to deal with a HMO but you're smart & can figure a way to get them to bend in your favor right? hope your issues turn around for you soon!

                  my oldest son is coming to watch football this afternoon. I will try to keep my mouth shut about his Corvette. last weekend he couldn't get the top up,now it won't go down. I would laugh about it except I'm still too upset he went so far into debt for an impractical car he didn't need!

                  cold here today,can wear my fleece Seahawks top. we still have tomatoes getting ripe. Freckles found the green ones tossed on the junk pile & ate some. she loves tomatoes!

                  hard to believe it's Oct. we didn't get a summer. just a few days of 80's & needing a fan. well at least it's not snowing yet!

                  sure good to have more posts to read. thanks everyone!

                  ((((hugs to all)))) Pati

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                    Pati,

                    The job so far is no word, we know that the contract got granted and that the budget is a work on progress, but nothing yet, i guess that means is good, our manager told us that he is fighting for all of us, but the new wave of kids that are the Management Above, has the mentality that the computers can do absolutely everything and human touch is not necessary, so they are wrorking in "MODERNAZATION" of the system to go automated for verything and until that system works they way we do, we will have a job. I am looking but no call to even interviews.

                    The car is fix and the insurance paid everything but $100 deductible, which is good. As for my daughter, i know what you are saying but I still worry, especially since she does not want to take birht control, says she heard they are bad for you. So i sat him on my couch this weekend and told him, you are older and with more experience, you want to have a go at her you make sure she is on the pill, she better not come with a belly before she graduates from College or both of you will be burried 30 feet under before the announcement finishes phrasing out of your mouths. Hopefully she will listen to him and all of her cousins whom pretty much gang up on her to start doing something for birth control. Just keeping my fingers cross and my prayeers high.

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                      I am usually on the aneurysm forum , I have had a roller coaster of feelings and still trying to be sportive of all who find their way their. I just had my second brain surgery and with complications, I sometimes get overwhelmed by my situation at home, my husband is borderline alzhimers ( sp) and has had cancer twice and has ulcerative colitis, so I guess I just thought I would check in here,to see what is happening in the world that isn't mine, I can see that hurt and worry are universal no matter what forum you are on, they all involve emotions that can run from one extreme to another. :) GING

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                        Oops , just reread and full of typos, guess my eyes are worse than they thought! , yikes :(

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                          ging I am glad to have you with us. sorry about your troubles tho. I was able to read it okay, so no worries there. Just keep posting with us.

                          I must be too talkitive today. every time I have to wait as they will not let me post too fast, LOL. trying to save double posting.

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                            ging,

                            i want to welcome you to the emotional support forum!

                            you're right about there being pain all around. you're welcome to say ANYTHING you want here! you may vent, be happy, whatever you need to be at that moment. we do not judge. if you want any feedback about alzheimer's disease, i post there regularly as do others. you can go to the alzheimer's archives and see our journey's for the past 3 years as we have dealt with loved ones with this terrible disease.

                            if you need support here, just tell us. i offer support, but some days i need support very much. that's the beauty of belonging to several forums. you always do get something that you want and need sometimes

                            , jeannie
                            Last edited by tic chick; 10-03-2011, 08:13 PM. Reason: can't get the garden pictures to show...have to ask again :(
                            WE ARE BT!
                            "The world is a better place when you're barefoot." Mark
                            "Don't go there unless you know the way back." TC
                            "...there will be an answer. Let it be." Paul McCartney

                            Comment


                              I am still here. Just having a hard time of it with my stress, anxiety, and pain. Haven't been to see my psych yet, they won't let me until I pay a charge I have. Hopefully soon.

                              The BF finally got a job. Not far from us, only about 15 minutes to get there. It is so opposite to what he was doing. Now he dresses up, dress pants, shoes, shirt. Has his own name card
                              . He is making more money and has more regular hours and most weekends off. He works for the Diplomat Pharmacy headquarters here in Flint. Answering calls. Cushy lol. So I take him then drop shortcake and I have the house to myself until about 3:45. He also has gone back to college to finish his associates in auto tech then will go on to his bachelor's in business management. He is sick of monkey wrenching he says lol. Don't blame him but he is phenomenally great at it. Says he wouldn't mind working in the same area as long as he doesn't have to wrench. Manager maybe something like that.

                              I am trying to get myself back together. Back to the routine we had up until mid April of last year. I have started taking my supplements also. Get outside every day thanks to Brody. I take my camera and collect pics of flower, fauna and creatures and then look them up to see what we have.





                              YAY!!! I found the restore auto-saved material button!! No more lost posts. I thought the above was gone, typed up two days ago and got sidetracked and wound up shutting down without posting. One of many lol. I knew that since it kept saying auto-saved it had to go somewhere, just need to mess around and mind the small print. NO MORE LOST POSTS LADIES!!

                              Now....where was I. Shortcake is in band! He picked the tuba, it is bigger than him lol. He has gotten tall and has lost so much weight that last years jeans that he was growing out of are a bit big on him. Amazing what fast food will do to you, didn't realize just how much McDs he was eating but at least once a week. Great for the budget too.....well....when you have a budget lol.

                              B is still in Georgia with his dad but is wanting to come home. Any illusions he had about his father have been smashed by his father himself. B was hoping to get a new start and thought his dad would help him, he said he would but now that B is there his dad doesn't want to do anything to help him. All he does is drink, sleep and work.

                              I knew this would happen but had hoped that his father might actually start acting like a father. No chance of that happening. Things are far worse here job wise than down there so he has been going through town looking for whoever that wants whatever done. I told him to tell people he will do just about anything for them and leave name and number. Some how he managed to come across the owner of a couple of businesses and was told to call in the morning. If he can get a car then he can do just about anything he wants. We have been discussing campus living near Atlanta. He would be away from his dad, be studying something he likes, and work part time. He may qualify for some financial aid too. Anything but coming back. I think it would be bad for him, crime and drugs are sky high, no jobs, no money. Michigan's economy is going down the tubes.

                              Haven't been here much except for lurking a lot. I guess it is because I really have no news, just pain, pain, pain. I am going to talk to my PM doc and get back to my rheumie and see if something more can be done. The last few days I have been taking my pain meds everyday instead of just here and there because I can't live like this. The MMJ helps with the burning in my feet and legs, helps my migraines and my anxiety and gets my lower lumbar back up to a tolerable roar but just like all meds it only works on certain things for me and only for so long. Maybe it is the strains. There are many that do different things. Usually the things that my pain meds don't quite reach. After a certain amount of activity nothing works except laying up for a day or two.

                              Spend time at FB cause it is mindless, quick and short. I can share political views there and do advocacy. I am thrilled by Occupy Wall Street and the movement that is spreading across the country. I keep telling my children to watch, pay attention, this is what we do to stand up for ourselves, we have the right, there are things that can be done. I am also happy to see that there is a generation that just may be able to save us.

                              Yeah, yeah mods, that's all I'll say.

                              Got a letter from SSI saying that I was deemed disabled and how much money I am supposed to get back which wasn't even half of what I am supposed to get so I had to dispute that and send in a bunch info to them for it to be reevaluated and am hoping to hear something any day now.

                              I must go, back hurting, I miss you all and hope you are all doing well.


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                                christina so glad asbout the job and all. loved hearing about the kids. poor B sad he had to learn how his dad is like. Band, boy and losing weight and getting so tall I imagine. so is my 11 year old granddaughter. Six year old grandson has such skinny legs just like his daddy did, makes me chuckle. where one was brown haired and currly, the other is yellow and straight. buT other than glasses, they have the same kind of grins and expressions. such joys for me.

                                i AM SURE YOU ARE GLAD THAT HE HAS WEEKENDS OFF. THAT WILL BE GREAT FOR FAMILY. tHAT IS A TREASURE THESE DAYS HAVING a job ith time to spend togethe. wondeful sorry bout capsa.

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