OT May Chit Chat

[Cherie]

Lovely here today. 80 and sunny out but with the windows and doors closed the house is staying at a nice 72 degrees. All the leaves are finally out and flowers are blooming and color is taking over the yard. I think all of the birdhouses have nests active and birdsong is plentiful. Got out briefly today to trim last year's growth off the Lace Hydrangea but it was too warm to be out for long. The pool is back up and running and I've done a 35 minute workout each of the last two days. I really had gotten stiff being out of it for so long.

[Howie]

Being disabled isn't for sissies, no doubt about it.

P.S. I'm guessing here: WPB = West Palm Beach?

My guess is WPB = Wide Pudgy Bottom.

[Frog42]

My guess is WPB = Wide Pudgy Bottom.

Will Punish Buffoon?

[renee]

Hi Suze Q-
I became a paraplegic immediately during my first exascerbation due to transverse myelitis.
The dime size lesion is a tad lopsided so atrophy has occurred more so in my left leg.

Lefty is skeeeny but not entirely without peripheral nerve activity so it isn't a boney stick.
My right leg has shrunk a bit but is short skirt worthy…..CHUCKLE.

I had mighty legs, rock hard calves from love of walking.

Early on I decided I needed to love my body regardless of what
shape it took. I have a special fondness for my scars which make me
a candidate for a biker gang.

Hmmm, leather jackets and fast rides.

WPB, got to think about that one.

[SalpalSally]

Well, I made it through another whole week, without having any kind of
emergency, power outage, flare, or other crappy mishap...Hoot Hoot!!
However....,I have noticed my age and weaknesses, a bit more, lately.

I wonder, how long I will be able to do it, at home, on my own?? Everything
is getting harder and harder to do, but I'm doing my best to keep it moving.
Doing my PT and OT each morning and afternoon. Standing and walking
in place....etc.... I sure hope n pray, I'm good for the next 10 or 20 years.

Praying, also, that this is a good week for you all!!

WPB = Won't Pop Bubble..

[Frog42]

Ooh I just thought of another one:

With Perfect Balance!

[Gary]

Sally you will be around for a long time....someone needs to keep an eye on Howie.

We had rain yesterday!!! .37 inches in a couple hours. A downpour of Biblical proportions....for us anyway. Along with hail that was 1/4 inch and covered the ground. I haven't had the nerve to go check the garden or the new fruit trees.

[Jeanie Z]

:) Hi everyone. WPB is where I live, West Palm Beach. The guesses were funny.

I slept until 4 PM today from 11:30 last night. Lacy got up on the bed and onto my chest and pawed me on the cheek to wake me.

No call from Andy yesterday or today. He will call when Jamie is going to be released from the hospital. He will be by here tomorrow to put out my trash and recycle.

Sally I wonder the same thing. Everything I have to do uses energy and I have only a little of that. I hope to be able to stay in my house until I die. The weaker I get the more I worry. Take care everyone. Jeanie :)

[SuzE-Q]

Thanks all for muscle atrophy experiences. I suspect mine is related to CNS nerve damage too, unfortunately.

Renee, do you do physio to lessen muscle loss, or it wouldn't help, given nerve damage? Agate do you? Howie?

Sally, avail yourself of all resources in your area that assist people to remain independent and in their own homes. It saves the system money to keep people in their homes, where possible, bringing in ancillary resources or making minor retrofits to help out. Chat with a social worker, they can assess and find resources to makes it more comfortable and easier for you to live at home, they are a goldmine of information.

Jeanie, I'm so sorry about the difficulties that Jamie is going through. A real challenge and emotional toll for everyone who loves her. I hope this latest hospital stay will put her on an easier path. Glad you made it out to visit your friend and pushed yourself a bit. I now have b12 and will start the shots myself, hoping for a bit more energy too.

WPB: women's profound brilliance?
WPB: way past bedtime?

[Howie]

I don't, and never even considered it. Taking care of me, and two cats is enough for me!

[agate]

I've had several courses of PT and still do the exercises I was told to do. I try to get some exercise in every day, up to half an hour a day.

With diabetes (Type 2) I understand that diet can control it but not without daily exercise.

The importance of exercise is made clear to me every time I skip a day of it.

[SalpalSally]

The importance of exercise is made clear to me every time I skip a day of it.

AM E N Joan. Thanks all for your cheerleading me forward.
I love you!!

[renee]

Suze-

I don't do any kind of PT to pump up leg muscles.
Muscle building has to come from work that I make my legs do.
Since legs don't listen to me there are as they will be-
any musculature I have is related to involuntary muscle movement.

I asked one doc about it and he replied that yes, atrophy can be reversed but
your muscles need to be able to respond to the direction from your head.

That's that.

[SuzE-Q]

Suze-

I don't do any kind of PT to pump up leg muscles.
Muscle building has to come from work that I make my legs do.
Since legs don't listen to me there are as they will be-
any musculature I have is related to involuntary muscle movement.

I asked one doc about it and he replied that yes, atrophy can be reversed but
your muscles need to be able to respond to the direction from your head.

That's that.

I thought that sometimes they can strap our legs to a cycling machine when they don't work on their own, and in that way, move legs and build muscle. Not sure, but I think I saw that on tv for people with spinal cord injuries?

[SalpalSally]

Yes Suz, I sometimes have to grab my left leg or foot and
move them manually. Then, usually, they will start to move
on their own as my brain insists...LOL.