OT July Chit Chat

[Sunshine]

Yesterday I was talking to a dude at the beach. It was sunny and 90. After ten minutes I told him I have MS and if I didn't get wet right away my legs would not work. So we walked into the water together.

He told me I was an inspiration. On the one hand I was flattered. On the other hand, I felt like a fraud. The real inspirations are people who have bad disease but get up every morning, get the kids off to school, go work two jobs in order to feed the kids, come home and help the kids, get to bed, wake up and do the same thing the next day.

But I said thank you. He then insisted on carrying my 9' longboard to the car. Again, I felt lucky to know the gent, but it also made me feel like an invalid, which I know is irrational, but there you have it!

[SalpalSally]

I hate the word invalid. Makes me feel like an alien.

[agate]

Hi.. just checking in and making sure Howie is behaving,, which doesn't happen to often,, hey Sam tells me,,

Virginia, so sad about that lady,, she sounds like a attention getter,,

not much else happening,, went to my neuro visit,, he told me to come back in 6 months,,, and informed me there is a new drug out for secondary progression,,{which is where I am },, every 6 months you get a shot,, don't know any more then this right now,,,, he wants me to try it after the trials are done,,

have a good week end,, later,,

Wonder if the drug is ocrelizumab:

Only registered and activated users can see links., Click Here To Register...

There's been quite a lot of enthusiasm about it. Maybe they've got a better solution this time. Let's hope.

[Frog42]

I hate the word invalid. Makes me feel like an alien.

Or even worse, lacking in validity.

[Pegakafarmgirl]

Wonder if the drug is ocrelizumab:

Only registered and activated users can see links., Click Here To Register...

There's been quite a lot of enthusiasm about it. Maybe they've got a better solution this time. Let's hope.

Thanks Agate,, I keep thinking,, what I am on now is working,, why rock the boat and try something else ?

[agate]

As the saying goes, "If it ain't broke, don't fix it." Newer drugs have often turned out to look good at first but then--oops! Something happens that nobody thought about, and then it's decided that the older drugs have a lot going for them.

And the longer we have MS, the harder it seems to be to adjust to any changes. Or at least that's the way things have been going for me.

Doctors seem to be eager to try this and then try that sometimes. Maybe your neuro thinks that if you're doing well on this drug, maybe you'll do even better on this newer drug.

[Jeanie Z]

:) Hi everyone. Last week my modem began cutting up. I called AT&T and he led me through a temporary fix and was sending me a new modem. It came but this one was still working so I did not get Jim to come hook it up.

Well yesterday the lights on the power and DSL began blinking as did the other three. I could not get online. I tried turning everything off and back on and that did nothing. I could not get here to our Cheers place.

Jim came this morning and hooked up the new modem and ran my backup program. It was so annoying last night that I could not come here or check the Wimbledon scores.

Watching the news is appalling right now. I am glad I am old and won't have to be here long as everything is going crazy. I am glad I found METV as it shows nice old shows.

I am fixing to make Howie's cole slaw again. I will make it often since it is easy and good. Yesterday was predicted to feel like 108. It did. I only went to he mailbox and back in. Keep cool everyone. Jeanie :)

[Virginia]

Peg, can you stay on the drug you are on for an indefinite period of time? I have not read up on it. I need to do that because I thought it was a chemo. Years ago I seem to remember a couple of others on this board who were on the same drug you are on.

[Virginia]

Jeanie, I like Howie's coleslaw also. I have only made it one time though and had to throw half of it away because I had too much food. Still, it is not that expensive and I will make it again. Just want to stay in practice so I will not forget the recipe.

If I have METV I am not aware of it. I would like to know because I am getting bored with everything.

[SalpalSally]

No picture but a joke. What did the Chinese janitor say when he jumped out of the closet..
.SUPPLIES!!!

[Frog42]

If I have METV I am not aware of it. I would like to know because I am getting bored with everything.

Where do you get your TV channels?

[Jeanie Z]

:) Virginia I have an antenna on top of one TV and all the TV's are connected to it. I get NBC on channel 5.001 and METV is on 5.002.

Shows like the Love Boat, Columbo, Lucy, Brady Bunch, Happy Days, etc. I also watch PBS a lot. Jeanie :)

[Virginia]

Sally, funny joke!

Vicky and Jeanie, I have Time Warner Cable. I think they are going to Comcast. It is the devil I know, vs the one I don't know, as we have always had Time Warner.

Jeanie, I thought you meant movies. I have already watched all those old shows so much that I have kind of gotten tired of them. I get over 70 stations with standard cable package, but I looked and no METV.

Well, I had BLT sandwich for dinner tonight. First time I have had bacon in several years. When I go to I-HOP I usually have pancakes with maple syrup, and since I had been still frying bacon in a pan I had not bothered to buy it. It tasted so good. I had two slices and could have had another one, but I would not let myself. Just as good in microwave as cooked in a pan.

[Howie]

I think it's better if done right in a microwave. Just seems less greasy, and never over or under cooked....once you figure out the cooking time.

Well, Howie Homemaker just bought a rug for the bathroom from Amazon. I think it's going to look so good, and the perfect size.

[Frog42]

We have Comcast but opted out of the phone service. They didn't like that and kept sending offers if we'd just switch. It took close to 2 years but they finally went away.

We're paying somewhere between $150 and $200 for internet and t.v. Lenny can afford it but then he's not on a fixed income either.